The 25 Best Alzheimer's Blogs of 2013
25 Best Alzheimer's Blogs of 2013
Caring for a loved one with Alzheimer’s disease can be a frightening and challenging task. Caregivers, family members, and medical staff address the emotions and questions around Alzheimer’s in the growing domain of blogs.
Here we have compiled the best of the best Alzheimer’s and dementia blogs from people who are truly “in the trenches.” These writers provide answers, empathy, encouragement, companionship, and an occasional hint of entertainment.
Alzheimer’s Reading Room
The Alzheimer’s Reading Room is a comprehensive site run by full-time caregiver and advocate Bob DeMarco. A variety of talented writers offer everything you need to know about the challenge of caregiving, your loved one’s condition, and self-care.
Thanks to the tireless efforts of everyone at the Alzheimer’s Reading Room, you have a go-to place for advice, education, and an occasional laugh. Stop by and start feeling empowered to handle life as a caregiver.
Alzheimer’s Front Row
Alzheimer’s Front Row is a real-world tribute to the trials and tribulations facing the “front row” caregivers of Alzheimer’s and dementia patients. This crafty Alzheimer’s blog unites skillful writing and tasteful exposés on the latest news in the Alzheimer’s community. It’s equal parts human interest and educational updates, and a fabulous resource for caregivers and those in the medical community.
Take it from writers who know: Alzheimer’s is a challenge, so arm yourself with the best information possible!
Caregiving With Purpose
Dr. Ina Gilmore has been on both the medical and the personal sides of eldercare. She puts her knowledge to work for you with tips and information on thriving despite—or perhaps because of—your role as a caregiver.
Caregiving With Purpose helps call readers’ attention to the potential for growth and the importance of self-care when caregiving. Gilmore also addresses some of the tangential but very important aspects of taking care of a loved one or patient with Alzheimer’s, such as nutrition and hospice care.
About.com’s Alzheimer’s and Dementia Blog
About.com’s Alzheimer’s and Dementia Blog is run by Esther Heerema, MSW. She helps guide readers confidently through the world of Alzheimer’s and dementia. Heerema offers information on the latest research and practical tips for making the most of your interactions with a loved one who suffers from any form of dementia.
Take advantage of the trustworthy, relevant work crafted by About.com’s expert guide, and learn about everything from navigating a doctor’s visit to identifying early symptoms.
Sharing My Life With Lewy Body Dementia
Sharing My Life With Lewy Body Dementia contains personal entries about the blogger’s first-hand experiences. This touching blog offers readers a rare glimpse into the sobering experiences of a gentleman facing the inevitable.
You’ll get a dementia patient’s opinions on everything from the medical community to time alone with his own mind. This blog is a fascinating touch-point for any reader hoping to gain insight into the mind of a loved one with dementia.
“Had a Dad” Alzheimer’s Blog
The award-winning “Had a Dad” Alzheimer’s Blog is a wonderful pit stop for any caregiver needing a breath of fresh air. This blogger’s opinionated, no-nonsense view of caregiving, dementias, and life after Alzheimer’s leaves readers feeling strangely comforted. A healthy dose of humor and sarcasm make this moving compilation of news and personal stories a true joy to visit.
So go ahead: read, laugh, learn, cry, and feel better in the knowledge that you have blogs like this to help light the way. Take advantage of her wisdom and advice while she still has the patience to give it!
FTD/Dementia Support Group
Frontotemporal dementia may be rare, but its effects are a major part of blogger Howard’s life. In his struggle to adapt to life with his condition, he gave the rest of the dementia community a wonderful gift: the FTD/Dementia Support Group.
This online support network is full of personal reflections and documentation of Howard’s attempt to lead by example. His belief that life is what he will make of it and his firm commitment to finding happiness and health despite his illness make this blog a must-read.
Alz.org | blog, the online publication of the Alzheimer’s Association, is a first-rate resource for caregivers, patients, and health care providers alike. This site has a bit of everything: updates on innovative research, Alzheimer’s awareness events, advocacy and funding endeavors, and readers’ stories.
Alz.org | blog offers the gift of community to those hoping to learn more about caring for a loved one with Alzheimer’s. But it can also open the eyes of researchers, health educators, and the public to the challenges facing the Alzheimer’s community.
Living With Alzheimer’s
Meet Joe. Both inspirational and incisive his Living With Alzheimer’s blog is making waves. As funny and frank as it gets, his wit and laid-back approach to life somehow make it easier to grapple with the challenges that dementia brings.
Joe makes the battle less painful—and certainly less isolating—by adding humor and casual grace into the mix. Stop by to give Joe some virtual applause for leading the way to a future of dignity, perseverance, and hope for everyone with dementia.
ElderCare at Home
Elayne Forgie is one formidable opponent for Alzheimer’s. She’s an expert in geriatric care and a passionate advocate for better Alzheimer’s caregiving. This businesswoman has used her professional experience to build a fabulous online home for caregivers and families struggling with Alzheimer’s.
ElderCare at Home offers high-quality information and round-the-clock support to visitors. It also provides a wealth of resources that are easy to navigate and highly relevant.
Early Onset Alzheimer’s
Early Onset Alzheimer’s blog is a must-read for individuals experiencing early-onset Alzheimer’s. Early onset Alzheimer’s is less common than standard age-related dementias. It is virtually always a shock to diagnosed individuals. Linda Fisher, blogger and author, knows the difficulty of this condition firsthand.
Fisher teaches readers not just how to manage such a frightening condition, but also how to live life to the fullest. Her passion for helping others—and showing them that life with Alzheimer’s is worth living—is a tremendous gift.
Alzheimer’s is Horrid
Coming to terms with a parent’s diagnosis can be a major battle. If you’re currently struggling to cope with the horrors of Alzheimer’s in a loved one, grab a cup of tea and settle in to read Alzheimer’s Is Horrid.
Blogger Jewels posts personal stories, reveries, and commentary on dementias. Just a few posts in, you’ll want to stand up and fight for a better future—and a cure—for everyone with Alzheimer’s. And thanks to Jewels, you don’t have to do it alone.
Lori La Bey was inspired to create Alzheimer’s Speaks by her mother’s battle with Alzheimer’s. She’s built a site to give voice to everyone touched by Alzheimer’s. La Bey’s mission is to enrich the lives of those suffering from Alzheimer’s by equipping their loved ones with information, encouragement, and the opportunity to give care with strength, devotion, and kindness.
As if that weren’t enough, she has announced her intention to construct the first International Resource Directory for Dementia so that anyone connected to these conditions can find the help they need.
Mike Donohue is a brave man. And his blog, Dementia Endured, is courageous, direct, bold, and energizes readers with a passion for action. With a personality like that, it’s easy to believe that he shall endure and overcome.
Donohue’s life experiences are open to the reader. He’s suffered from alcoholism and now is adjusting to Alzheimer’s. However, Donohue’s strength and determination will remind readers that it’s best not to hold any punches when it comes to dementia.
Memories From My Life
Pat White is the daughter of an Alzheimer’s patient and a dedicated advocate for her mother and the disease. When she’s not traveling to visit her mother in a nursing facility, White’s helping other caregivers through her blog, Memories From My Life.
This creative and crafty blog is a true treat for readers. It’s fresh, hopeful, unique, and informative. Get personal tips and tales gathered by a woman with more than one person’s share of experience with Alzheimer’s.
When a spouse is diagnosed with early onset Alzheimer’s, most people want to turn and run. Not Rhonda Brantley. This brave woman was caregiver to her husband for the final five years of his life. Brantley turned her experience into Diagnosis: Alzheimer’s to help spouses and caregivers going through the same heart-wrenching challenge.
Part documentary of Billy Ray’s final years and part informational resource, Diagnosis: Alzheimer’s is the story of lives fractured by Alzheimer’s, with the highs and lows wrapped into one beautiful and bittersweet tale from start to finish.
Living in the Shadow of Alzheimer’s
Living in the Shadow of Alzheimer’s can be a dark experience. Things are not easy for Sheri, caregiver to her husband, Bob. However, her determination, love for her husband, and commitment to finding life’s silver lining provide a ray of light in an otherwise dim world of dementia.
Read mini-posts about the laughable moments of life with Bob’s ever-present sidekick, “Al” (Alzheimer’s), or break into a helpful collection of Alzheimer’s resources. And count your lucky stars that Sheri takes the time to write for readers who also know the ins and outs of life with “Al.”
Living With a Thief Named Lewy Body Dementia
If compelling, no-holds-barred writing is what you seek, Kathy Lowrey is the writer to give it to you. Lowrey welcomes readers into her life as she chronicles her caregiving experiences with her husband of 31 years.
Living With a Thief Named Lewy Body Dementia is crushingly honest, and will have you feeling like Kathy’s best friend in no time. Be a friend in return and drop her a line.
3 Years and 13 Dumpsters: Cleaning House After Dementia
Blogger Joy Walker invites you to join her on the journey that became 3 Years and 13 Dumpsters. Moving and fun, this blog combines the joys and trials that occupy the life of a caregiver for a loved one with dementia.
Three Years and 13 Dumpsters shines with creativity, talent, and substance, complete with comprehensive resources for caregivers seeking support for Lewy Body Dementia and Alzheimer’s. Join Walker as she learns even more about living, loving, and Lewy Body Dementia.
Comprehensive and well crafted, the AlzCareBlog is run by Senior Living Residences for families and caregivers searching for answers. AlzCareBlog offers everything from brain-boosting recipes to updates on the latest research.
Expert bloggers share information about pharmaceuticals, caregiver wellness, and tips that can help anyone touched by Alzheimer’s. You can also find touching reader stories and personal accounts that will open your eyes to the power of informed, compassionate caregiving.
Minding Our Elders
Writer, speaker, columnist, and blogger Carol Bradley Bursack shares her wisdom in Minding Our Elders. This award-winning site is a support group in itself for those searching for support, answers to tough questions, and the power to be a caregiver.
Minding Our Elders encourages readers to recognize (and never forget!) the dignity and importance of their elderly loved ones. Take Bursack’s advice to heart and you and your loved one will age with the grace we all wish to possess.
Fisher Center for Alzheimer’s Research Foundation
The Fisher Center for Alzheimer’s Research Foundation offers a collection of fabulous Alzheimer’s blogs run by caregivers, health experts, researchers, and those personally coping with the effects of Alzheimer’s.
These Alzheimer’s blogs are coupled with the excellent resources of the Fisher Center, bringing the best of the best to one location. They offer everything from practical skill building to suggestions for meaningful conversations with Alzheimer’s patients.
Help! Aging Parents!
Author and former counselor Susan Arnsberg Diamond has built a successful career around helping families at many stages. When she completed a manuscript on aging parents, her literary agent suggested she launch that material in a blog. The result, Help! Aging Parents!, is a compassionate resource for adult children navigating parental care.
Many of the posts are in the form of questions you can ask yourself to ensure you’re making the best choices for all. For example: “Is this decision better for me or my parent?” Diamond also includes a number of hairstyle tips, especially important for the self-esteem of older women.
If you tap only one resource in your search for Alzheimer’s guidance, the Alzheimer’s Association’s should be it. Alz.org delivers just about every bit of information you need.
This site is packed with caregiver notes, information on warning signs, clinical trial links, and medical news. It also offers message boards and complete listings of opportunities for community support. It’s an excellent manual on all-things-Alzheimer’s.
Alzheimer’s Weekly contains a range of insight and information on this devastating disease. Although it’s inspired by the blogger’s mother’s dementia, the tone is always upbeat and the focus on solutions.
Popular posts include a clarification of the many types of Alzheimer’s and dementia, and 100 tips to prevent memory loss. Especially helpful and engaging is the blog’s Eat2Think feature, focusing on nutrition that supports good memory.