When you tell someone that you have idiopathic pulmonary fibrosis (IPF), chances are they ask, “What’s that?” Because while IPF greatly impacts you and your lifestyle, the disease only affects about 100,000 people total in the United States.

And explaining the disease and its symptoms isn’t exactly easy either. That’s why we reached out to IPF patients to get a sense of what they’re going through and how they’re managing it all today. Read their inspiring stories here.