We’ve carefully selected these blogs because they are actively working to educate, inspire, and empower their readers with frequent updates and high-quality information. If you would like to tell us about a blog, nominate them by emailing us at firstname.lastname@example.org!
Parkinson’s disease is a disorder that affects the central nervous system and causes a variety of symptoms, such as slow movement, tremors, stiffness, and balance difficulty. It’s a progressive disease and the 14th leading cause of death in the United States.
Because this disease affects movement, it can interfere with quality of life. If you’re living with Parkinson’s disease, you need as much support as possible. Fortunately, there are resources to help you every step of the way. You’re not alone in this struggle. These blogs can offer the strength you need to face this disease head-on.
Shake, Rattle and Roll
Kate Kelsall was diagnosed with Parkinson’s disease over 20 years ago. She has experienced many emotional highs and lows with her illness and speaks candidly about them on her blog. She acknowledges the difficulties of living with this disorder, but at the same time, she’s learned how to accept her diagnosis. Her blog gives others the strength to enjoy life. Rather than hide her condition, she aims to share her experience with the world.
Robert Rodgers established Parkinson’s Recovery in 2004. He was motivated and inspired after his mother’s experience with Parkinson’s-related mobility challenges. His blog is unique because it showcases experiences from a loved one’s perspective. If you have balance problems due to this disorder, his blog offers simple and effective strategies for handling them, as well as tips on coping with Parkinson’s.
Parkinson’s Today Blog
This blog from the National Parkinson Foundation offers the latest research news, plus practical tips for people living with Parkinson’s and their caregivers. Whether you’re looking for information on the history of Parkinson’s disease or you need advice on speaking with your loved one’s doctor, this blog has something for everyone.
Tweet them @ParkinsonDotOrg
This blog by the Michael J. Fox Foundation for Parkinson’s Research provides a wealth of information aimed at helping you better understand this disorder. You’ll find articles on how to live life to the fullest with Parkinson’s, as well as information on the latest research, fundraising efforts, and legislation that might affect people with Parkinson’s.
Tweet him @MichaelJFoxOrg
Off and On: The Alaska Parkinson’s Rag
Peter Dunlap-Shohl uses his blog to share his journey with Parkinson’s. His blog also serves as an invaluable resource and clearinghouse for the Anchorage Parkinson’s Disease Support Group. Learn about upcoming sessions and discussions on hard-to-talk-about subjects such as end-of-life concerns. Dunlap-Shohl also offers general coping tips and uses humor and cartoons to make the most out of an unpredictable situation.
Studio Foxhoven: My Parkinson’s Journey
Retired kindergarten teacher and freelance writer Terri Reinhart was diagnosed with Parkinson’s at age 49. Her blog provides an open and honest look into her life. She uses her teaching and writing skills to share her journey and spread hope to others. Reinhart’s blog covers a variety of topics from disability bureaucracy to coping with fatigue.
Tweet her @TerriReinhart
Andy Daly doesn’t have a traditional Parkinson’s disease blog. While he acknowledges the condition, it doesn’t preoccupy him. He takes his readers on a journey through his life, sharing everything from his childhood memories to his recent travels, always with a dose of warmth and humor.
Tweet him @andydaly25
Author Sherri Woodbridge was diagnosed with Parkinson’s at the age of 44 and started her blog in 2007. Her primary goal is to educate, inform, and help others with Parkinson’s realize they’re not alone. She provides encouragement through humor. Readers can find general information on Parkinson’s disease, including symptoms and treatments, as well as conversations about how it can be an invisible disorder.
Tweet her @slwoodbridge
The Journey Unexpected
Stephanie Parker lives with Parkinson’s disease, along with several other health issues. She started blogging in 2007 and uses it to bring awareness to different types of chronic illnesses, including Parkinson’s disease. She talks about her diagnosis and shares personal posts, such as one about how much she misses her grandmother. She gives readers a glimpse into her life with the goal of motivating and offering encouragement, and also offers up a host of great recipes.
Tweet her @TheJourney_1
A Soft Voice in a Noisy World
Karl Robb was diagnosed with Parkinson’s disease at age 23. Since his diagnosis, he’s become an advocate for others living with the disease, as well as a writer and speaker on issues related to it. His blog deals with coping and healing, and he offers a wealth of positivity so those with Parkinson’s can live life to the fullest.
Bev Ribaudo was diagnosed with Parkinson’s at age 47, although she began showing symptoms in her 30s. She is truthful and sincere as she brings awareness to this disorder and chronicles her daily life. Read about her 16-year RV trip across the United States, or learn about upcoming Parkinson’s events. She brings a combination of seriousness and humor to her posts.
Tweet her @YumaBev
Shaky Paws Grampa
Kirk Hall was diagnosed with Parkinson’s disease in 2008. He dealt with anxiety and depression after his diagnosis. After coming to terms with his illness, his experience became a catalyst for giving strength to sufferers and their caregivers. His blog offers hope, empathy and support. Read his post on coping with depression or learn about upcoming Parkinson’s awareness events.
Aging and Parkinson’s and Me
John Schappi was diagnosed with Parkinson’s in 2009, at 80 years old. If you’re older and living with Parkinson’s, you might relate to his blog. He discusses the various struggles he’s had to overcome, such as coping with Parkinson’s after hip replacement surgery and exercising after surgery. Despite his challenges, he aims to live life to the fullest, and he inspires others with Parkinson’s to do the same.
Darcy Blake’s blog is an excellent source of encouragement and support for women living with Parkinson’s disease. Read about treatments, learn how to be an advocate for your health needs in light of the current political climate, and find a comparison of her Parkinson’s symptoms with those of her mother.
The Perfect Servant
Parkinson’s disease doesn’t only affect the people actually living with it. It also impacts their families. Elizabeth Rose is the 78-year-old caregiver to her husband, David, who lives with the condition. Her blog posts provide an honest look into the day to day of being a caregiver, from medication mix-ups to worries about David’s care should something happened to her.
The Cure Parkinson’s Trust
The Cure Parkinson’s Trust provides information related to slowing, stopping, and reversing Parkinson’s disease. The blog is an excellent resource for staying up-to-date on the latest Parkinson’s research, such as new techniques for early detection and what medications could combat early-onset Parkinson’s.
Tweet them @cureparkinsonsT
Parkinson’s Disease Foundation
The Parkinson’s Disease Foundation offers an abundance of helpful information to help you or your loved one manage the illness. You’ll find the latest Parkinson’s-related policy news, real stories from people on how to cope with a diagnosis, and suggestions for how to lend your support to awareness efforts.
Tweet them @PDFParkinson
Davis Phinney Foundation Blog
On its blog, the Davis Phinney Foundation for Parkinson’s shares the latest in Parkinson’s research information and awareness events, as well as everyday tips for how to get a handle on the disease. For example, read about how exercise can ease anxiety in Parkinson’s, or get a motivation boost from real-life stories from people living with the disease.
Tweet them @DavisPhinneyFND
The Parkinson Alliance Blog
This blog’s primary writer, Margaret Tuchman, was diagnosed with Parkinson’s over 30 years ago. Through her writings, she offers support to the Parkinson’s community. Along with her blogging partner, Gloria Hansen, she highlights the latest research news, alternative therapies, nutrition tips, and more. The goal is clear: offer hope and compassion.
Tweet them @ThePAlliance