More than 50,000 Americans are diagnosed with Parkinson’s disease each year. The condition ranks as one of the most common neurodegenerative disorders in the world, affecting over 10 million people worldwide. Yet, each case feels so individual.
This year’s best blogs celebrate the uniqueness of each person’s journey — along with their friends, family, and caregivers — while emphasizing the tremendous value of sharing experiences and living life to the fullest.
Robert Rodgers was inspired to start Parkinson’s Recovery after his mother died from what he believes were complications from taking multiple medications to treat her Parkinson’s symptoms. On the blog, Rodgers shares insights on natural therapies and explores the latest treatment options and medical research.
Cartoonist Peter Dunlap-Shohl writes about his experiences with Parkinson’s with honesty and energy, his illustrations punctuating posts about adapting to life after a Parkinson’s diagnosis. Off and On welcomes its readers to join the community and “experience a little therapy as well.” The blog is also an information clearinghouse for the Anchorage Parkinson’s Disease Support Group, where meeting schedules and agendas are posted.
The blog of the Michael J. Fox Foundation for Parkinson’s Research, Foxfeed features the latest reporting and analysis on breakthroughs in Parkinson’s research. Popular topics include research updates and living with Parkinson’s, and the website also includes a podcast where expert panelists discuss recent news and treatment options.
A Soft Voice in a Noisy World focuses on dealing and healing with Parkinson’s disease. Author and entrepreneur Karl Robb, who has lived with Parkinson’s for more than 30 years, writes with sensitivity and kindness about the challenges of living with a chronic illness — with inspirational quotes and motivational posts aplenty. It’s perfect for those looking for a balance of mind, body, and spirit.
Darcy Blake started this blog as an extension of Parkinson’s Women Support, but realized the site would have more impact from a personal perspective. With sections that range from broad (nutrition and research) to specific (deep brain stimulation), Parkinson’s Women aims to provide support and encouragement for women living with the condition.
For those looking for a side of humanity and humor with their Parkinson’s news, The Perky Parkie delivers. Allison Smith is unwaveringly positive. A cancer survivor who was diagnosed with Parkinson’s at age 32, Smith knows what it means to face a challenge. The Perky Parkie tackles real-life issues like dating with Parkinson’s and recovery after surgery, all while remaining true to its tagline — “I dare you not to laugh.”
Run by the nonprofit Parkinson’s Foundation, the Parkinson’s Today blog focuses on information useful to those living with the disease and covers issues like science news, recent research, and the benefits of expert care. It also boasts a Caregiver Corner and tackles tough topics including raising awareness of Parkinson’s and tips for daily living.
The Trust is dedicated to funding research to slow, stop, and reverse Parkinson’s. The news section of the U.K.-based charity puts a heavy focus on results of recent clinical trials and the latest scientific discoveries and also features a quarterly Parkinson’s webinar series.
Essential information, practical tools, and inspiration for people living with Parkinson’s — that’s the core focus of this foundation. Along with posts on treatments and health, their wonderful “Moments of Victory” series tells the personal stories of those with Parkinson’s who are living life to the fullest.
Shake It Up Australia Foundation (Michael J. Fox Foundation’s partner in Australia) is a nonprofit that promotes and funds Parkinson’s disease research in that country aimed at better treatments and ultimately a cure. Specifically, the blog tells the stories of heroes in the community and promotes local fundraising and awareness events.
Those seeking a first-person perspective of living with Parkinson’s will find it here. Sharon Krischer started the blog to encourage the exchange of ideas and solutions with others whose lives have been affected by the disease. Her writing is deeply personal, providing insights into the tips and tricks that improve her life, paired with her thoughts on the latest in research and treatments.
Looking for information on the scientific research being conducted on Parkinson’s disease — in terms you can easily understand? The Science of Parkinson’s has a simple mission: to bridge the gap between the media headlines and the actual science when it comes to Parkinson’s research. Dr. Simon Stott, the deputy director of research at the Cure Parkinson’s Trust, posts regular updates that explain the science behind new discoveries, informs about the latest in clinical trial results, and introduces readers to some of the people behind the research.
Out-Thinking Parkinson’s offers an insider’s perspective on quality-of-life improvement for people affected by the condition. The blog is a deep-dive run by scientist and engineer Gary Sharpe into all things Parkinson’s and features practical insights, tips and tricks, and video testimonials.
Parkinson’s News Today is a digital news website dedicated to covering the science, research, and advocacy news about the disease. It’s a go-to for science news junkies looking for daily updates. The current headlines are supplemented by regular columns and forums that cover topics including living with Parkinson’s and alternative treatment options.
Run by author Sherri Woodbridge, Parkinson’s Journey strives to support and encourage others with Parkinson’s disease and to assure them they’re not alone. The blog tells Sherri’s personal story but touches on issues of interest to many in the Parkinson’s community — dealing with depression, first-person perspectives on drugs and procedures, and the importance of a strong support system.
If you have a favorite blog you’d like to nominate, please email us at firstname.lastname@example.org.
Jen Thomas is a journalist and media strategist based in San Francisco. When she’s not dreaming of new places to visit and photograph, she can be found around the Bay Area struggling to wrangle her blind Jack Russell terrier or looking lost because she insists on walking everywhere. Jen is also a competitive Ultimate Frisbee player, a decent rock climber, a lapsed runner, and an aspiring aerial performer.