Each person’s journey with multiple sclerosis (MS) is different. When a new diagnosis leaves you searching for answers, the best person to help might be another person experiencing the same thing as you.
Many organizations have created online resources for people with MS or their loved ones to seek help from around the globe. Some sites connect you with doctors and medical experts while others connect you with regular individuals like yourself. All can help you find encouragement and support.
Check out these seven MS support groups, forums, and Facebook communities that may help you find the answers you seek.
Our very own MS community page allows you to post questions, share tips or advice, and interact with people with MS and their loved ones from around the country. From time to time we post anonymous questions submitted to us by Facebook friends. You can submit your own questions and use the answers provided by the community to help you live a better life with MS.
We also share medical research and lifestyle articles that can be useful to people with MS or their loved ones. Click here to like our page and become a part of the Healthline MS community.
Okay, it’s not really a website — it’s an app. But MS Buddy is still a great resource! Compatible with iOS 8 or later (in other words, you need an iPhone, iPad, or iPod Touch), MS Buddy connects you directly with other people who have MS.
This free app asks you a few questions about yourself, such as your age, location, and type of MS. It then connects you with other people who have a similar profile. If you choose, you can reach out to the users you’re matched with. It’s a great way to connect with people who get what it’s like to live with MS. Who knows, you might meet your next best friend!
MS World is run by volunteers who have MS or have provided care for someone with it. The setup is very straightforward: MS World hosts several forums and a continuous live chat. The forums are centered on specific questions, including topics like “MS Symptoms: Discussing the symptoms that are associated with MS” and “The Family Room: A place to discuss the Family Life while living with MS.”
The chat room is open for general discussion throughout the day. However, they do outline specific times of the day when discussion must be related to MS only.
To take part in chats and other features, you’ll likely have to register.
The Multiple Sclerosis Foundation Facebook Group harnesses the power of an online community to help people with MS. The open group currently has more than 21,000 members. The group is open for all users to post questions or offer advice, and users are able to leave comments or suggestions for everyone to see. A group of site administrators from the Multiple Sclerosis Foundation also steps in to help you find experts when needed.
Multiple Sclerosis Association of America (MSAA) runs a free online community. My MSAA Community allows people with MS, their families, and their care partners to share information and experiences about living with multiple sclerosis.
By joining the community, you can connect with other people affected by MS, contribute to ongoing conversations in the open forum, and start your own conversation with a question or a post about your journey.
MS LifeLines is a Facebook community for individuals with MS. The community supports the MS LifeLines peer-matching program, which connects individuals with MS to lifestyle and medical experts. These peers can point to research, lifestyle solutions, and even nutritional advice.
MS LifeLines is run by EMD Serono Inc., maker of the MS medication Rebif.
Patients Like Me connects people with MS and their loved ones to one another. A unique aspect of Patients Like Me is that people living with MS can track their health. Through several online tools, you can monitor your health and the progression of your MS. If you like, this information can be used by researchers looking to create better and more effective treatments. You can also share this information with other community members.
Patients Like Me isn’t built just for people with MS: It has features for many other conditions, too. However, the MS forum alone has more than 74,000 members. These members have submitted thousands of reviews of treatments and completed hundreds of hours of research. You can read all about their experiences and use their insight to help you find the information you need.
As with any information you find online, be sure to be careful with the MS resources you use. Before exploring any new treatments or stopping current ones based on advice you find online, always talk with your doctor first.
That said, these online features and forums can help you feel connected to others who know exactly what you’re going through, be they healthcare providers, loved ones, caregivers, or other people with MS. They can answer questions and offer a virtual shoulder for support.
You’ll face a range of challenges living with MS — mental, physical, and emotional — and these online resources can help you feel both informed and supported as you strive to live a healthy, fulfilling life.