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Facing a new multiple sclerosis (MS) diagnosis can be overwhelming. You’ll likely have a lot of questions and uncertainties about what the future holds. Rest assured, many helpful resources are just a click away.
Keep these MS resources handy for times when you need encouragement and support the most.
National and international MS foundations are dedicated to helping you manage your condition. They can offer you information, connect you to others, organize fundraising events, and fund new research.
If you’re not sure where to start, one of these MS organizations can likely point you in the right direction:
When you feel ready for it, consider joining a volunteer group or participating in an activist program. Knowing that what you’re doing can make a difference for yourself and others living with MS can be incredibly empowering.
The National MS Society is a great way to get involved in MS activism and awareness. Their website provides information about how you can join the fight to advance federal, state, and local policies to help those with MS and their families. You can also search for upcoming volunteer events in your area.
RealTalk MS is a weekly podcast where you can learn about current advances in MS research. You can even chat with some neuroscientists who are dedicated to MS research. Keep the conversation going with RealTalk MS.
Healthline’s very own Bezzy MS is a free community app that connects you directly with other people who have MS. The app is available free of charge for Android and iOS devices. Click below to install:
Once you’ve downloaded the app, it will ask you a few questions about yourself, such as your age, where you live, and your type of MS. It then connects you with other people who have a similar profile. If you choose, you can reach out to the users you’re matched with. It’s a great way to connect with people who get what it’s like to live with MS.
MS Navigators are professionals who can provide you with information, resources, and support about living with MS. For example, they can help you find a new doctor, get insurance, and create long-term plans. They can also help you with everyday life, including diet, exercise, and wellness programs.
You can reach an MS Navigator by calling their toll-free number, 1-800-344-4867, or by emailing them through this online form.
If you’re looking to join a clinical trial, or just want to track the progress of future research, the National MS Society can point you in the right direction. Through their website, you can search for new clinical trials by location, MS type, or keyword.
You can also try searching via ClinicalTrials.gov. This is a comprehensive listing of all past, present, and future clinical trials. It’s maintained by the National Library of Medicine at the National Institutes of Health.
Most pharmaceutical companies that manufacture medications to treat MS have patient support programs. These programs can help you find financial support, join a clinical trial, and learn how to properly inject your medication.
Here are links to patient assistance programs for some common MS treatments:
People with MS and advocates who run blogs aim to educate, inspire, and empower readers with frequent updates and reliable information.
A simple online search can give you access to hundreds of bloggers who are sharing their lives with MS. To start, check out the Online MS Communities or MS Conversations.
Your doctor is an incredibly important resource for your MS care. Keeping this guide handy can help ensure your next appointment with your doctor is as productive as possible. It can help you prepare for your visit and continually remember to ask all the questions that are important to you.
Phone applications can provide you with the most up-to-date information about MS. They’re also valuable tools for helping you keep track of your symptoms, medications, mood, physical activity, and pain levels. Here are two examples:
Hundreds of organizations have created ways for you and your loved ones to find information and support to make living with MS a little easier. This list includes some of our favorites.
With the help of these resourceful organizations, your friends, family, healthcare team, and other trusted individuals, living well with MS is possible.