Sometimes you might feel stuck. Stuck on a feeling, a loss of action, or just plain frustration. Multiple sclerosis (MS) has its uncertainties, and there may be times you don’t know what to do next or how to make your life better with this progressing disease. Though easier said than done, reaching out to find a lending hand or a listening ear may help you navigate this winding journey of MS.
So while the unknown road ahead might seem scary, know that you’re not alone. We asked our Living with Multiple Sclerosis Facebook community to tell us their feelings about the uncertainty of MS.
"Keep your focus on the helpers! Be a helper, in any possible way we can — even a smile or quick note to someone can be a huge help to them and us. Give thanks in everything. Pray always.
— Debbie AG, living with multiple sclerosis
Distraction. Go try to help someone else — i.e., volunteer somewhere if possible. Go outside and “smell the roses.” Mother Nature provides us with such beauty. Notice the little things around you. Find a favorite place to go. Talk to someone. Go to a cafe and just sit. Get out among the public. Realize that you’re really not alone. Listen to music, turn on the TV, play a game, join an online or in-person support group. Go visit a church, talk to a pastor (they’re free), or have one visit you if you can’t get out. There are many things you can do.
— Carol West, living with multiple sclerosis
Always talk to someone about how you’re feeling … this alone helps. I find when I don’t, my emotions get worse.
— Jeanette Carnot-Iuzzolino, living with multiple sclerosis
Some days are a lot more difficult than others! There are days I am just so lost or want to give up and be done with it all! Other days the pain, depression, or sleepiness get the better of me. I don't like taking meds. Sometimes I want to stop taking them all. Then, I remember why I’m fighting, the reason I push and keep going. They are 10, 13, 15, 17, and a husband. Sometimes it takes me longer to get to the “why,” or remember that I need them too, but I always end up there.
— Crystal Vickrey, living with multiple sclerosis
These statements were submitted by members of Healthline’s social media communities and should not be considered medical advice. They have not been approved by any medical professional.