This content does not replace the advice of your doctor.
After having Multiple Sclerosis for 28 years, the advice I always give to others through my writing and as a health advocate is to keep a positive attitude. Despite having a disability we are still ABLE to do, feel and create. Remaining positive and being mindful of the blessings in your life will go a long way as you continue on your MS journey. It will help you minimize stress which will, in turn, help you feel your best. I find it has helped me remain strong all of these years. You can do it too!
Never give up.
Try to stay positive. A good attitude and being proactive about your health can make a real difference in your quality of life.
Keep your sense of humor! We have enough to cry over, try to keep smiling and laughing - even the little things . . .
Surround yourself with a good team (family, friends, healthcare professionals)that will ALWAYS motivate, encourage and remind you that this disease will not break you!
The best advice I read after being diagnosed was a Japanese proverb, "Fall seven times, stand up eight." That helped me understand MS will knock me down, but I need to get up and move forward.
Seek out all the information that you can find about MS and apply what you can to your situation. Staying proactive is probably the most important advice I can give anyone. Don't rely on medication alone, eat healthy, stay moving, and utilize any resource that will keep your condition from deteriorating.
Look at YOUR diet, what do YOU put in YOUR MOUTH? Is it natural, fresh, green ? There are NO negative side affects from eating fresh vegetables, lean meat, and non-prepackaged commercially made meals. I've changed MY intake this past year, and feel better then I've ever felt in my life !!! Oh, and spiritually, get connected. I have turned my healing over to my creator.
Eat all organic foods!
The gift of MS to all of us: the ability to honestly reflect on our lives, identify the important priorities we lost somewhere along the way, and live accordingly with gratitude, simplicity, and calm.
Your heart and mind is stronger than your body.
Try to just take it one cliche at a time.
Stay cool, and stress free.
Don't sweat the small stuff.
Listen. Really listen to your body, and when it tells you what it needs- provide it.
Keep a journal of symptoms, questions, and all related comments.
Exercise as much as possible.
Don't let MS define or limit you.
Find the best neurologist who specializes in MS. Make sure your doc is active in research, clinical trials and is up to date on new treatments. Never look at your situation in a negative way! We all know that MS stinks, however when you can turn any situation around to find positive it will change your life. For example, I look at my MS as a blessing in that I realized that being a workaholic took me away from my family, my friends and took a toll of my health. I also learned that you cannot judge a book by it's cover. My disease is nearly completely invisible. Think of everything you have to be grateful for every single day!
Stress is a major contributor to your body's immune system which causes inflammation where your lesions become susceptible to disabling effects. My advice would be to get rid of those that cause you stress and exercise to your own ability without causing too much stress. Stress free is the ultimate goal which is hard to come by this day in age.
I was diagnosed in 1998 and have been given a lot of advice and opinions, but I find that experience holds more weight. In other words "share what you know, not what you think you know.
I was diagnosed in 2003 at the age of 20. It has been 11 years and I'm still learning too! Staying positive is most essential because it's so easy to get mentally down on yourself for something you cannot control. I went through years of denial even when I was going to physical therapy and using a walker, steroids and treatment. One day I had enough, and I pulled myself together. I got in the right frame of mind! An now most people don't even know I have MS. For awhile, I wouldn't even talk about my condition, but I found that advocating made me feel better and I quit feeling ashamed. I also try to stay active when I can! It feels good to hike and overcome something that comes easier to some people! It's like having a small victory to achieve a simple goal like hiking! God bless!
Your normal may change periodically but you're still you. Accept it and realize that's okay.
NEVER EVER give up and never just "settle" for what they tell you. Always research and be your own advocate. Remember, they are 'practicing' medicine. There are very few definitives...