Peyronie’s disease often causes stress and anxiety, sometimes giving way to depression. Communication opens the door to exploring treatment options and learning how to cope.

Peyronie’s disease is a disorder in which scar tissue forms inside the penis. Over time, the penis may develop a bend or curve, especially during an erection.

Depending on how severe it is, Peyronie’s disease can lead to sexual dysfunction. You might also develop anxiety over appearance or sexual performance. In some cases, it affects psychological and sexual well-being and overall quality of life.

Talking about the physical and emotional reality of it all may feel unsettling at first. But it’s an essential step in addressing the full range of issues related to this condition.

You can find support when facing the psychological effects of Peyronie’s disease.

Studies suggest that about 81% of men with Peyronie’s experience emotional stress, and 48% have some level of depression. More than half report that Peyronie’s has had a negative impact on a relationship.

Other research indicates that people with Peyronie’s and symptoms of depression are less likely to have a partner or be in a relationship. And being gay almost doubles the odds of developing depression.

Reasons for this emotional toll include:

  • altered physical and self-image
  • sexual dysfunction
  • loss of sexual confidence, performance anxiety, reduced libido
  • negative partner reactions, strain on intimate relationships
  • stigmatization, avoidance of sexual contact, isolation

“Beyond the physical symptoms, the emotional and psychological impact is real,” said Dr. Jamin Brahmbhatt, a urologist and sexual health expert at Orlando Health in Florida. His practice has seen men who have developed major emotional issues or given up on dating or intimacy due to Peyronie’s disease.

“Coping with Peyronie’s involves more than managing physical symptoms,” Brahmbhatt told Healthline. He believes men should be encouraged to express their feelings. They should also seek support from professionals, counselors, or peer groups familiar with the disease and its effects.

Brahmbhatt notes that understanding the disease, as well as treatment options, can reduce anxiety and fear. There may be some hesitation to speak openly due to societal norms around masculinity. But healthcare professionals can provide confidential and compassionate help. Open communication is the key to finding the right treatment for your specific concerns.

When seeking a urologist, look for one who has treated Peyronie’s disease. If things don’t go well, you can always seek a second opinion.

Many men with Peyronie’s don’t talk about it, which can make you feel isolated. But you’re definitely not alone. In the United States, about 1 in 100 men over age 18 have a Peyronie’s disease diagnosis. Researchers estimate the number may be closer to 1 in 10, since some men don’t seek help.

It’s best to start by visiting a urologist. They can provide recommendations and referrals for local support, such as:

  • psychiatrist
  • psychologist
  • certified sex therapist
  • peer support groups

You can also consider online support forums such as:

Being honest about how Peyronie’s affects you can “strengthen your bond and help you navigate the condition’s impact on intimacy,” said Brahmbhatt.

It’s also important to ask about your partner’s experiences because it affects both of you. They may have some physical discomfort or anxiety about sex and intimacy as well. If you’ve been avoiding sex, your partner may have attributed that to a lack of interest in the relationship.

Research suggests that relationship and emotional concerns of Peyronie’s can influence each other.

If you’re comfortable with it, ask your partner to attend your therapy sessions. Alternatively, you can pursue couples therapy to help foster good communication and explore sexual intimacy.

The Association of Peyronie’s Disease Advocates recommends that you not try to talk about everything all at once. They suggest revisiting the conversation as things change. It might also help to involve your partner as you learn more about the disease and potential treatments.

If you’re currently single

You don’t have to be in a relationship to feel the stress of Peyronie’s disease.

Though research on this topic is limited, a 2008 study found that some single men with Peyronie’s may avoid intimacy or dating at all. Most experts in the field agree that a person with Peyronie’s disease can be emotionally affected by it regardless of their relationship status.

How and when should you start a conversation with a potential new partner? A qualified therapist can help you figure out the right path. A therapist can help create strategies for:

  • building self-confidence
  • effective two-way communication
  • navigating sexual intimacy with a new partner

There’s no cure, but the overall prognosis for men with Peyronie’s disease is good. There are effective treatments, and it’s not harmful to overall health. Men with Peyronie’s can have a fulfilling sex life.

Reluctance to seek help could hold you back physically and emotionally. Seeing a urologist, talking with your partner, and seeking help for emotional distress may improve your outlook.

Though it’s a physical disorder, Peyronie’s disease can lead to stress, anxiety, or even depression. Seeing a urologist to learn about treatment options is a good first step.

It’s also important to speak openly about your emotional well-being. Getting started may be the hardest part. But open communication with your healthcare team and partner is key to feeling better.

Consider seeing a sex therapist or other mental health professional. With or without a partner, they can help you cope with emotional distress and improve intimate relationships.