We’ve carefully selected these blogs because they’re actively working to educate, inspire, and empower their readers with frequent updates and high-quality information. Nominate your favorite blog by emailing us at firstname.lastname@example.org!
Nearly 1.5 million Americans have some form of lupus, estimates the Lupus Foundation of America. But many people know little to nothing about this complex autoimmune disease. In addition to the physical limitations of lupus, the lack of understanding may be one of the greatest challenges for people who live with it.
That’s why an online lupus community can be so valuable. In addition to raising awareness and creating a culture of compassion and hope, these blogs a powerful reminder that if you live with lupus, you aren’t alone. Discover the best lupus blogs of the year below.
Following her lupus diagnosis at age 26, Sara Gorman was determined to keep living her life in the same way. Four years later, she was exhausted from fighting for life instead of truly living it. That’s when Sara decided to work with her disease and not against it. She shares the details of that experience in her book, and continues to offer tips, advice, and information about living with lupus on her blog. Visit the blog.
The Life of a 30-Something with Lupus
While The Life of a 30-Something with Lupus began as an outlet for Flo’s thoughts and feelings some 10 years after her diagnosis, it’s become a haven for those living with the same disease. That’s likely because she’s a shining example of what it means to keep fighting. In frank posts about her diagnosis and the many struggles that come with it, Flo’s optimism and heart are downright inspiring. Visit the blog.
Kaleidoscope Fighting Lupus
Education, information, advocacy, support, and collaboration make up the mission of Kaleidoscope Fighting Lupus. These goals are represented beautifully on the organization’s blogs. From diagnosis and treatments to managing symptoms and where to find help, there are posts answering just about any question you may have about lupus. Visit the blog.
Marisa Zeppieri launched LupusChick in 2008 in hopes of inspiring and encouraging other people living with lupus and autoimmune diseases. Her blog is a wonderful mix of information, advice, recipes, coaching, life hacks, true personal stories, and just the right amount of humor. Marisa is on a mission to show people it’s possible to live a vibrant and healthy life despite chronic illness, and she’s doing a great job. Visit the blog.
Sometimes, It Is Lupus
Iris Carden writes honestly and humorously about life with lupus, a condition she received a diagnosis for in 2006. Sometimes, It Is Lupus is where she shares the ups and downs of her experiences so other “lovely lupies,” as she calls readers, might relate. Other features on her blog include a lupus business directory, helpful links, and the Warriors’ Wall, a space for people around the world to share what they’d like the world to know about lupus. Visit the blog.
Lupus Foundation of America Blog
The Lupus Foundation of America is committed to improving the quality of life for people living with lupus. The organization provides answers, education, and support. Its blog features current news and research, strategies and tips for managing symptoms, and thoughtful profiles that show what it’s really like to live with this disease. Visit the blog.
Lupus UK’s Blog
A national U.K. charity dedicated to helping people with lupus, Lupus UK supports some 6,000 members. The blog is a platform for practical information in line with the charity’s mission. Posts include information about fundraising events, current news and reports, management techniques, and other topics designed to give readers the knowledge and support they need. Visit the blog.
Lupus Research Alliance
The world’s leading private funder of lupus research, the Lupus Research Alliance is committed to improving the lives of people living with the disease. On the blog, you’ll find details about current studies and research funded by the organization. There’s also a calendar of upcoming events benefiting people living with lupus. Visit the blog.
The Lupus Initiative
The Lupus Initiative is an education program managed by the American College of Rheumatology’s Collaborative Initiatives Department. Its mission is to reduce disparities and improve outcomes for people living with lupus. On the blog, you’ll find news and research, personal stories from people living with the disease, and many educational resources. Visit the blog.