Blogs and forums are two great ways to connect with people in the lung cancer community. Listening to other people’s stories can help you process your own experience. In addition, the sheer number of people living with lung cancer means there is probably someone going through something similar, as you try to understand your specific condition.
Advocacy organizations also use blogs and forums to reach people affected by lung cancer. You can find information on symptoms and treatments, as well as a sense of social support and even encouragement.
Whether you’re recently diagnosed, or have specific questions, here is a starting list of some places to find support, information, and encouragement around life with lung cancer. As with any medical information you encounter online, you should be careful with sources. Talk with your doctor before making changes to your treatment plan.
Some of the larger forums and blogs may interest people at all stages of a lung cancer diagnosis. A forum can be a great starting place if you have not yet connected to other people dealing with a similar condition.
Smart Patients Lung Cancer Support Group
Part of the Smart Patients network of online communities, the Lung Cancer Support Group is a place where people with lung cancer and their caregivers discuss a range of issues about living with the condition. The topics are in-depth and wide-ranging, including treatments, clinical trials, and the emotional aspects of a lung cancer journey.
The Research Evangelist
Dave Bjork is a lung cancer survivor and biomedical research advocate. He hosts a podcast and blogs on the science behind new treatment innovations. He also highlights the work of people standing up for those living with lung cancer.
Inspire: Lung Cancer Survivors
Inspire is a great resource for discussion and interaction hosted by the American Lung Association, with more than 90,000 members. There are subgroups for discussion of specific topics, including non-small cell lung cancer stages, small-cell lung cancer, treatments, and genetic markers.
The Lung Cancer Research Foundation reaches out to the community with monthly webinars on issues that get to the heart of living with lung cancer. The regular #TogetherSeparately livestreams cover topics like alternative medicine, new diagnoses, navigating insurance, and more.
Slightly fewer females than males are diagnosed with lung cancer each year. Females have a 1 in 17 lifetime chance of developing lung cancer, while males have a 1 in 15 chance, according to the American Cancer Society.
People assigned female at birth are also more likely to develop different types of lung cancer, like adenocarcinoma, than people assigned male at birth. Women’s lung cancer blogs and forums can be particularly useful or comforting for people in a similar situation.
It’s important to note that the stress of enduring gender inequality may play a part in developing the disease beyond genetic factors.
Life and Breath: Outliving Lung Cancer
Linnea Olson first blogged about her lung cancer journey in 2009. It was already several years after her initial diagnosis. In Life and Breath, she offers a personal, uplifting, and engaging look into her life through clinical trials, treatments, and connecting with others in the lung cancer community. As 2021 gets going, Linnea is still putting compelling words onto this emotionally rich website.
EmBen Kicks Cancer
Emily Bennett Taylor received a lung cancer diagnosis in 2013. In 2020, she reported that she’s 7 1/2 years NED — no evidence of disease. In the interim, she’s shared details about her life, her care team, and how she has faced her lung cancer diagnosis with the support and care of doctors, friends, and family.
Every Breath I Take
Lisa Goldman had no risk factors for lung cancer before her diagnosis. She blogs in part to dispel some of the myths and common perceptions about the condition. Her story helps increase awareness and hopefully helps more people get early diagnosis and treatment.
A lung cancer diagnosis can be daunting. You may want to learn about the treatments you may be undergoing or coping strategies. The below forums allow you to find other people with early stage lung cancer.
CancerGRACE: Lung Cancer
The Global Resource for Advancing Cancer Education (GRACE) provides a wealth of educational information on lung cancer. They provide a searchable database by phase of cancer journey, including just diagnosed. Treatment information covers both non-small cell lung cancer and small-cell lung cancer at all stages, including the early stages. GRACE also hosts forums for people living with lung cancer.
MyLifeLine: Cancer Support Community
MyLifeLine is a large network of people living with cancer. The site offers a series of discussion boards where people can find a group to share experiences. One LifeLine discussion board is “Living With Lung Cancer,” open to anyone with a diagnosis, including people with early stage non-small cell lung cancer and small-cell lung cancer.
LUNGevity Forums: NSCLC Group
LUNGevity is dedicated to funding scientific research into lung cancer. The organization supports an active online forum for people living with non-small cell lung cancer (NSCLC above), including people with early stage disease. There are subforums specific to lung cancer mutations like ALK+, EGFR, KRAS, RET, and ROS1.
According to the American Cancer Society, lung cancer is diagnosed in more than a quarter of a million people in the United States every year. But everyone’s experience is different.
People may have small-cell lung cancer or non-small cell lung cancer, and therefore different treatments. There are also subcategories of non-small cell lung cancer. These are:
- squamous cell cancer
- large cell carcinoma
Forums for people dealing with varying symptoms and side effects allow you to share and exchange accounts of life with lung cancer.
Lung Cancer Patient Stories
The Lung Cancer Research Foundation has a place for first-hand stories of people living with lung cancer, who offer their personal accounts of the condition. Many of these stories include discussion of symptoms they experienced prior to diagnosis and during their treatment journey. It’s a great place to get more information from people who are living the experience.
Lung Cancer: Forums
LungCancer.net hosts online discussion forums for people living with lung cancer. It has a search function that allows users to hone in on posts related to specific symptoms or other health concerns that they experience during their lung cancer journey.
The Canadian Cancer Society hosts a forum for people living with lung cancer. Individuals invite discussion on specific symptoms to find support and community. It is possible to search the forum for any available insight on specific symptoms or issues related to lung cancer and people who experience it.
Lung cancer is an individual journey, but people can connect through shared stories and experiences. Whether you want to simply read about others or engage in real-time conversation, blogs and forums can be a gateway into the lung cancer community.