A hepatitis C diagnosis can be scary and overwhelming. Your symptoms can range in severity, and so can the lifelong impact. It can be a lot to take in.
The physical burden is often matched by the emotional toll of processing what it means to have this condition. There are often a million questions that may not occur to you until you’ve already left your doctor’s office, or aren’t comfortable asking.
That’s where these blogs come in. They can connect you with others and help you get the information you’re looking for. Here are a few to add to your must-follow list.
Connie Welch is a hep C warrior and patient advocate. She’s devoted to helping patients and their families. She founded Life Beyond Hep C as a faith- and medical-based resource for support. It’s a religious blog that encourages others to live beyond the disease, stigma, trauma, or tragedy.
Karen knows what it’s like to be newly diagnosed — scared and looking for answers to make her feel better, not worse. She’s been there, done that. She naturally gravitated toward the blogs that made her feel empowered, not helpless. So that’s the type of blog she set out to create. On I Help C, find honest (and sometimes humorous) first-person posts and more.
Funded by the Public Health Agency of Canada, CATIE is the country’s go-to resource for hepatitis C and HIV information and news. The site connects healthcare and community-based service providers with the latest science. The blog also links out to all the latest in hepatitis C news while providing resources on prevention, treatment, and healthy living.
The World Hepatitis Alliance is a global organization led and driven by patients. They work with governments and national members to raise awareness, influence policy, and drive action to find and treat those living with hepatitis. Their blog shares hepatitis news from around the world, as well as information on their latest advocacy efforts.
The Hepatitis C Trust is a U.K.-based charity led and run by patients, with the goal of eliminating hep C in the United Kingdom. They hope to do this by raising public awareness, putting an end to discrimination, and creating an active community of patients willing to raise their voices together.
Rise Again was started by Greg Jefferys, who is a leading advocate for making hep C treatment affordable and accessible. On this blog, he writes about everything surrounding the issues associated with hep C. Visitors to the site can find information about how to find treatment, what it’s like to go through a hep C relapse, and hear how to manage everyday life with hep C.
Have a favorite blog you’d like to nominate? Email us at firstname.lastname@example.org.