Endometriosis is a health condition that’s estimated to affect approximately 1 in 10 women during their reproductive years. The symptoms of endometriosis can vary, however, it’s known for being extremely painful and contributing to infertility.
But there’s hope for people with this condition. New developments in diagnosing and treating it are always emerging, and several advancements have improved medical care today. Women and their doctors are more informed than ever about endometriosis, which is contributing to improvements in healthcare and treatment.
From organizations dedicated to raising awareness and fundraising for research, to support groups, these resources provide reliable information about endometriosis. You’ll learn the basics about the condition and discover how to get involved to help yourself or others who have received a diagnosis.
Nonprofit organizations in the United States
Several nonprofit organizations in the United States aim to educate patients and doctors about the latest advancements in endometriosis. These groups also advocate for patients, offer support, and facilitate research to better understand endometriosis.
- Endometriosis Association
- Endometriosis Foundation of America
- Endometriosis Research Center
- RESOLVE: The National Infertility Association
International nonprofit organizations
These are nonprofit groups across the globe dedicated to supporting people with endometriosis and their families, educating physicians and consumers, and advocating for better patient care.
- World Endometriosis Society
- World Endometriosis Research Foundation
- International Pelvic Pain Society
- Endometriosis.org (International Groups)
- Daily Strength Support Group
- Endometriosis UK
- International Association for the Study of Pain
- Millen Magese Foundation
These pages can help you to discover more about how endometriosis is diagnosed, and how to live with it once it is. They offer trusted information, as well as statistics about the condition.
- Planned Parenthood: Endometriosis
- Women’s Health: Endometriosis
- Healthline: Endometriosis
- Healthline: Endometriosis During Pregnancy
- MedicineNet: Endometriosis and Cancer Risk
- Endometriosis Foundation: What Is Endometriosis?
- UCLA Health: Endometriosis
- MedlinePlus: Endometriosis
- Medical News Today: What to Know About Endometriosis?
Becoming more informed about treating endometriosis and finding care is important. These websites bring you trusted information about endometriosis advancements, treatments, and they can also connect you with a doctor.
- The American College of Obstetricians and Gynecologists
- Choosing Wisely
- The Center for Young Women’s Health
- Planned Parenthood
- National Institutes of Health
You can also check out Healthline’s article on what to expect from a laparoscopy for endometriosis.
Several books have been published with in-depth information about endometriosis. These links can connect you to some of the best books about the condition and women’s health.
- The Doctor Will See You Now: Recognizing and Treating Endometriosis by Tamer Seckin, MD
- The Endo Patient’s Survival Guide: A Patient’s Guide to Endometriosis & Chronic Pelvic Pain by Vital Health
- Stop Endometriosis and Pelvic Pain: What Every Woman and Her Doctor Need to Know by Andrew S. Cook, MD
- Ask Me About My Uterus by Abby Norman
People who live with endometriosis can be empowered to thrive despite this condition. Connect with others to learn more, get tips, and offer support.
- My Endometriosis Team
- Daily Strength
- Support Groups: Endometriosis
- Endo Warriors
Learn more about endometriosis from these advocacy and awareness groups. Many of them provide events and resources to educate doctors and patients on the condition.
- Worldwide Endometriosis March
- National Women’s Health Network
- Council on Patient Safety in Women’s Health Care
- Endo What?
- For Grace
Get information on endometriosis on the go — as well as support from others — with these mobile apps: