Urinary incontinence, or unintentional urination, is common in people who have dementia. It can range from mild leaking to unintentional urination. Less commonly, it also refers to unintentional bowel movements, or fecal incontinence. This includes the occasional leakage of stool before a bowel movement or a total loss of bowel control.
Incontinence is a symptom that develops in the later stages of dementia. About 60 to 70 percent of people with Alzheimer’s develop incontinence. But it’s not a defining trait. Not all people who have dementia have or will develop incontinence.
As a caregiver, knowing more about this condition can help. Learn why this happens, tips on managing incontinence and dementia, and what you can do.
In the later stages of dementia, a person’s ability to react quickly and remember things is reduced. They may no longer recognize when they experience the urge to urinate or have a bowel movement. Reasons for incontinence in someone with dementia include:
- not recognizing the bathroom
- communication issues
- being unable to get to the bathroom in time
- mobility loss
In some cases, accidents can lead to feelings of embarrassment, and possibly depression.
Incontinence is also common in people without dementia. About 25 million Americans experience incontinence. It also affects about 23 percent of women over 60 years old. Medical causes of incontinence in older adults include:
- enlarged prostate
- neurological complications, often caused by a stroke
- diseases such as Parkinson’s disease, multiple sclerosis, and prostate cancer
- side effects of medications that relax muscles of the bladder and reduce awareness, such as sleeping pills and tranquilizers
Urinary tract infection (UTI) is also common in people with dementia. Watch for signs of UTI, including:
- burning or painful urination
- cloudy or blood-tinged urine
- constant urge to urinate
- pain in the pelvis or back
- fever, nausea, vomiting
- mental status changes or abrupt worsening of confusion, including significant changes in behavior
UTIs can worsen without proper treatment.
What increases the risk for incontinence
Certain factors can also increase a person’s risk for incontinence. These factors include:
- being overweight, as weight puts pressure on the bladder
- age, as older adults tend to have weaker bladder muscles
- pregnancy and childbirth, which can affect the pelvic floor and bladder muscles
- menopause, as hormones affect the bladder
- enlarged prostate or prostate surgery
- certain medications
- trauma that affects the nerves
Medications are available to calm an overactive bladder, if overactive bladder is the cause of the incontinence. But some have side effects that can make dementia worse. Talk with the doctor about options that apply to the person you’re caring for. In some cases, where incontinence is caused by an underlying medical condition, treating the condition may help.
How to maintain bladder health
When managing someone’s diet:
Fluid intake is also important, as it keeps the bladder and bowel healthy. Space out roughly six to eight glasses each day. Fiber-rich foods like bran, fruit, and vegetables can help with constipation.
Pads and pull-up pants
If the person you’re caring for needs to wear absorbent products such as pads, adult underwear, or liners, you may also need to wash their skin. Regular exposure to moisture can cause a number of skin problems, such as inflammation, and fungal and yeast infections.
Keep skin clean by washing it gently with a pH-balanced perineal cleanser, and then patting it dry. Creams and powders can be useful in protecting skin from moisture overexposure.
Incontinence often happens due to timing. It may help to recognize potential signs that a person needs to go, such as straining, turning red in the face, and tugging at their clothing. If you help them get dressed, use clothing that’s easy to remove such as pants with elastic waistbands instead of buttons and belts.
One successful technique is prompted voiding. This is a type of bladder retraining that helps people to maintain a regular bathroom schedule. For example, every two hours, ask if they’ve had an accident, have the person use the toilet, and praise successes.
The goal to reduce accidents at home is to help the person you’re caring for identify and use the toilet with ease. Here are some things you can do to achieve this goal:
- Remove obstacles from paths taken most often to the toilet.
- Leave the bathroom door open at all times or put a sign in front of the door. Avoid locking the door.
- Make sure the toilet is at a good height and that lighting is good. Install grab bars next to the toilet, if possible.
- Wait until they are next to the toilet to help remove their clothing.
At night, you can place a portable toilet chair near their bed. Installing motion sensor lights may also help avoid accidents. If they can’t get to the bathroom without help, consider getting a bed pad or a waterproof mattress protector.
Outside or in public
When going out, plan in advance. Time your travel stops around bathrooms, and be prepared for accidents by bringing a pad and extra clothes.
Everyone reacts differently to incontinence. Some may find it upsetting, while others recognize it as part of their condition. The best way to approach the situation is with understanding and genuine interest for improvement.
If an accident occurs, try to:
- be respectful of privacy
- speak or address the issue in a calm manner
- avoid scolding, or looking upset or frustrated
Wash your hands thoroughly in warm water before and after helping with toileting or changing adult undergarments or pads.
A doctor can help identify the underlying cause of incontinence for treatment. A doctor can help write up a treatment plan to help cure or manage this condition. Bring notes to the appointment to help the doctor identify the underlying cause. Here are some things you may want to take note of:
- how long the person has been experiencing incontinence symptoms
- if the person has had episodes of incontinence in the past
- whether they’re experiencing urinary incontinence, fecal incontinence, or both
- whether it’s a trickle or a flood
- if incontinence is more pronounced at certain times of the day or night
- physical or mental barriers you’ve observed
- typical diet and how much fluid is consumed
You can also reach out to other health professionals for support. A nurse can provide advice on hygiene and management. A physical therapist can tell you more about equipment and adaptions. Talk to the doctor for recommendations.
Caregiving is both rewarding and challenging. Many people find managing incontinence one of the more difficult aspects of care. But it’s important to know that you can help someone manage this condition. Techniques like prompted voiding can help reduce or even eliminate incontinence in people with dementia. It may even be cured if it’s caused by an underlying health condition.
As a caregiver, it’s also important to get counsel from the healthcare team and support from family and friends. Share with others what’s going on in your life and get connected with other caregivers. They may be able to share their experience and provide solutions to similar situations. Online resources for caregiving include Family Caregiver Alliance and Alzheimer’s Foundation of America.