Chronic lymphocytic leukemia (CLL) tends to progress very slowly, and many treatments are available to help manage the condition.
If you live with CLL, qualified health professionals can help you understand and weigh your treatment options. Other sources of support are also available to help you cope with the effects this condition may have on your life.
Read on to learn more about some of the resources that are available for people with CLL.
If you have CLL, it’s best to see a leukemia specialist who has experience treating this condition. They can help you learn about the latest treatment options and develop a treatment plan.
Your primary care doctor or community cancer center may be able to refer you to a leukemia specialist in your region. You can also search for specialists near you using the online databases maintained by the American Society of Clinical Oncology and American Society of Hematology.
Learning more about CLL may help you understand your condition and treatment options, which can enable you to gain a sense of control and confidence.
You can find a lot of information about this condition online, but some online sources are more credible than others.
For reliable information, consider exploring the online resources developed by the following organizations:
- American Cancer Society
- American Society of Clinical Oncology
- CLL Society
- Leukemia & Lymphoma Society
- National Cancer Institute
Information specialists from the Leukemia & Lymphoma Society are also available to help address questions about this disease. You can connect with an information specialist by using the online chat service, filling out an online email form, or calling 800-955-4572.
If you’re finding it difficult to manage the emotional or social effects of living with cancer, let your treatment team know. They may refer you to a mental health specialist or other sources of support.
You can also speak with a professional counselor through Cancer Care’s Hopeline. Their counselors can offer emotional support and help you find practical resources for managing your condition. To connect with this service, call 800-813-4673 or email firstname.lastname@example.org.
Some people also find it helpful to connect with other people who live with CLL.
To find other people who are affected by this condition:
- Ask your treatment team or community cancer center if they know about any local support groups that meet in your area.
- Look for a CLL patient support group, register for a patient education forum, or attend a virtual event through the CLL Society.
- Check for local support groups, register for an online group chat, or connect with a peer volunteer through the Leukemia & Lymphoma Society.
- Search the American Cancer Society’s database for support groups.
- Sign up for an online support group through Cancer Care.
If you’re finding it difficult to manage the costs of treatment for CLL, it may help to:
- Let the members of your treatment team know that cost is a concern. They may be able to adjust your prescribed treatment plan or refer you to financial support resources.
- Contact your health insurance provider to learn which healthcare providers, treatments, and tests are covered under your plan. You may be able to save money by changing your insurance provider, insurance plan, or treatment plan.
- Ask your community cancer center if they offer any financial support programs. They may be able to refer you to a financial counselor, patient assistance programs, or other resources to help manage the costs of care.
- Check the manufacturer’s website for any medications you take to learn if they offer any patient discount or rebate programs.
The following organizations also offer tips and resources for managing the costs of cancer care:
Managing a CLL diagnosis can be challenging, but many resources are available to help you cope with the physical, emotional, and financial challenges that it may bring.
Your treatment team or community cancer center can also help you find support resources online or in your community. Let your treatment providers know if you have any questions or concerns about your condition or treatment needs.