The Alzheimer’s Association estimates that this brain disease affects nearly 6 million people in the United States alone. It can affect anyone at any age, but most people are around 65 years old at onset.
It’s been said that when you meet a person with Alzheimer’s or dementia, you’ve only met one person with Alzheimer’s or dementia. That’s because symptoms reveal themselves differently in different people. No two people who develop Alzheimer’s follow the same path.
But whatever your journey with Alzheimer’s or dementia looks like — whether you have it or you know someone who does — you’re not alone. Online resources like the following blogs offer a wealth of knowledge and support.
Alzheimer’s Reading Room
Bob DeMarco is the founder of the Alzheimer’s Reading Room. His inspiration for the blog was his mother, Dorothy, who lived with Alzheimer’s disease. He sets out to give other caregivers a place where they can find high-quality and accurate information to better support them in their new roles and help them realize they aren’t alone in their journey. Visit the blog.
Sharing My Life with Lewy Body Dementia
Lewy body dementia (LBD) is a form of dementia with symptoms similar to Parkinson’s. This means that motor skills are affected. The author of this very direct and personal blog talks extensively about what it’s like to have both your memory and motor skills compromised, as well as what it’s like to live with hallucinations, another prominent symptom of LBD. Visit the blog.
Elder Care at Home’s Blog
Written by the staff of Elder Care at Home, this blog is a thoroughly documented referral service for family members looking for Alzheimer’s and dementia support. They offer a range of tips, suggestions, and transition guidelines for family members who are living with memory loss disease. Visit the blog.
Early Onset Alzheimer’s Blog: Encourage, Inspire, and Inform
Linda Fisher launched this blog after her husband, Jim, received an Alzheimer’s diagnosis. She immediately assumed the role of caregiver and set out to learn everything she could about the disease, from both the patient and caregiver’s point of view. Her blog is a trove of information. It also includes information on advocacy for the Alzheimer’s Association and other groups that provide education about memory loss disease.Visit the blog.
Alzheimer’s Speaks Blog
Lori La Bey is the creator behind Alzheimer’s Speaks. Her goal is to “shift society’s negative perception of aging and illness.” The site boasts a broad range of topics, including personal stories, different techniques for caregiving, and lessons learned. La Bey also hosts a podcast, where she discusses many Alzheimer’s-related issues. Visit the blog.
Memories from My Life
As with many other memory loss blogs, Pat White got her inspiration from a personal experience. When her mother received an Alzheimer’s diagnosis, so began Pat’s journey, too. Memories from My Life features personal anecdotes of what it’s like to be a caregiver, as well as scientific news about the latest research and breakthroughs in memory loss disease. Visit the blog.
Living in the Shadows of Alzheimer’s
Blog author Sheri is the caregiver to her husband, Bob, who received a diagnosis of early onset Alzheimer’s and frontal lobe dementia. Living in the Shadows of Alzheimer’s incudes resources from various organizations and support groups, plus products such as puzzles for people with Alzheimer’s to complete. She also has a special section for poetry. Visit the blog.
Alzheimer’s Association Blog
The official blog of the Alzheimer’s Association, this is the go-to resource for those on the front lines of Alzheimer’s. Caregivers, patients, and anyone the disease touches can find what they need here. Personal stories about caregiving and raising awareness, useful tools and resources, information about advocacy efforts — find it all in one place. Visit the blog.
Alzheimer’s & Dementia Weekly
Readers can find over 1,000 articles on a bevy of topics associated with Alzheimer’s and dementia on this blog. Along with caregiver tips and diagnosis primers, you’ll also find legal advice, the latest information on Alzheimer’s research, insights on how to adjust your daily life, and much more. This blog isn’t to be missed. Visit the blog.
Truthful Loving Kindness
Truthful Loving Kindness is the personal blog of Belinda. She chronicles her own journey with mild cognitive impairment (MCI) here, which is a predecessor to Alzheimer’s. Belinda holds nothing back, providing details of when her first symptoms started to reveal themselves in 1999 at age 41. She also features contributors who are eager to share their journeys with dementia through powerful personal stories. Visit the blog.
The Long and Winding Road
When Ann Napoletan’s mother received an Alzheimer’s diagnosis, everything changed. Her world was turned upside down, but she decided to create The Long and Winding Road to educate and advocate for people who have the disease. She lists a bevy of resources and recommended reading. She’s also the founder of Marilyn’s Legacy, a nonprofit to increase Alzheimer’s awareness. Visit the blog.
Dealing with Alzheimer’s Blog
Kris started this personal blog when she received a diagnosis of early onset Alzheimer’s at age 46. Today, she’s 61 years old and still writing about her experiences. She shares the challenges of her day-to-day activities, what her symptoms are like, and what it’s like being a grandmother with Alzheimer’s. Visit the blog.
Dementia Diaries: A Journey with Dementia
Author Cassandra Jones started Dementia Diaries in 2012 soon after her mother received a diagnosis of semantic dementia, which impacts behavior. She had discovered that there weren’t many online resources available to help her as a caregiver, or her mother as a patient. Along with writing about their shared journey, Cassandra also founded the DEANA Foundation. This nonprofit aims to help families with the overwhelming cost of caring for a family member with dementia. Visit the blog.
Dealing with Dementia
Dealing with Dementia chronicles the journey of a dementia caregiver. The author, Kay, gives advice on how to navigate the early stages of the disease, when to stop driving, and how to get financial support. Come here for actionable advice on how to deal with real issues the dementia community faces. Visit the blog.
Reflections of an Alzheimer’s Spouse
In 2016, Allan S. Vann lost his wife to Alzheimer’s disease after a 10-year battle. On his blog, Allan writes about the disease and his experiences as a caregiver, as well as his hopes for the future. He also links to his writings, which have appeared in the Huffington Post and the Annals of Long-Term Care, among others. Visit the blog.
Whether you’re a caregiver for someone with dementia or Alzheimer’s or searching for at-home or facility care, Caring.com can help. Taking care of someone with a disorder like Alzheimer’s isn’t easy, so it’s important to be sure to take care of yourself, too. Visit the blog.
Us Against Alzheimer’s
This site isn’t just a blog — it’s an advocacy organization dedicated to pushing for a cure for the disease through government policies and research. On Us Against Alzheimer’s, take action by signing a petition, writing to lawmakers, or sharing your own story. You can also tune into free monthly teleconferences from leading experts in the field of Alzheimer’s care. Visit the blog.
Alzheimer’s Drug Discovery Foundation (ADDF)
The mission of the ADDF is very focused: fund and develop drugs solely for the purpose of fighting Alzheimer’s disease. Founded in 1998, the ADDF is the only charity in the world completely dedicated to finding drugs for Alzheimer’s. You can donate, attend an upcoming event or conference, or learn more about the latest research on drug development for the disease. Visit the blog.