Tuberous Sclerosis Surgery Video

Cindy and Rob's 2-year-old son, Thomas, suffers from Tuberous Sclerosis, a disease that causes brain tumors and results in seizures. Pediatric neurosurgeon Dr. Howard Weiner performs a groundbreaking surgery at N.Y.U. Langone Medical Center to sav...
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Male Speaker: Well, Cindy and Rob's 2 year old son Thomas has had seizures his whole life because he suffers from Tuberous Sclerosis. It is a disease that causes brain tumors, but now a ground breaking surgery is offering hope for children like Thomas. I want to warn some of you that the images are about to be very graphic. Male Speaker: Today, we will implant the specialized electrodes over the brain to capture where the seizures are starting, and once we know that we will have a target to go after. We start by taking Thomas down for MRI Scan to try to determine exactly where all of these lesions are. Female Speaker: I think about him, I feel very scared. But, what am I going to do. Male Speaker: You see he has these whitish areas in the brain tissue all through out and each one of these is possibly a seizure focus, and we are very concerned today about what is going on here in the back. Basically, at this point we are all set to go. We make a series of these holes. Here we are going to run into trouble, so maybe you should stop here. Beautiful! Nice work. Right there, on the bottom, there is a big tumor right there. Male Speaker: This is the grid that we put in. Male Speaker: That grid will sit on the brain tissue, and will record directly the electrical activity from the brain. Male Speaker: I was just told that, the right side have now just finished. Female Speaker: I feel very scared; it is just an abnormal experience to turn your baby over to people who are going to cut him open. Male Speaker: You learn to just swallow your fear and keep marching forward. Male Speaker: We make a single whole in the bone and then we slide the strip electrodes in, and then these wires are then tunneled out through the scalp. Male Speaker: We don't secure the bone back in, because if there is pressure from the electrodes, we want the pressure to be able to lift this bone off and not cause pressure on the brain. Okay, good job. So everything went according to plan. The case was not easy but we accomplished the goal. We did the surgery so that's the main thing. All done, doing great. I am happy with the cover, so we will see what we get. Male Speaker: Thomas came out of surgery, hopefully he will come back in sort of come back to consciousness a few hours or so.

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