Montel Williams joins Alex to meet with leading experts about dystonia, a condition she suffers from, at Massachusetts General Hospital.
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The Effects of Dystonia Travis Stork: And thanks to Montel, Alex’s story is just beginning after a gaining strength emotionally, she still wanted medical answers. And just a few weeks ago, Montel caught up with Alex, took her to Massachusetts General Hospital to meet with the leading experts about her condition. Montel: Alex. Alex: Oh my goodness. Montel: Give me a hug, come here. You know, since we appeared on the show, you do not know the number of people who have stopped me. People have asked how you are doing. How are you doing? Alex: I do have my really hopeful days, I am like, and Montel can do this, so can I. Male: You were in a little pain before. Now the pain is what? Alex: Well, it went from like an 8.5 to now where it is 10 plus off the scale. One doctor wanted to increase the medication. One doctor wanted to decrease the medication. I am getting so many different opinions. Montel: So that is why we are here at Massachusetts’ General. There is one of the top doctors in Harvard, who are going to give us some alternatives and maybe some options. That is what we need, is just options, right? Alex: Yeah. Male: Alright, let us go. Nutan Sharma: Hi, it is nice to meet you. Alex: Thank you for taking your timeout. Montel: This is the first that is someone is going to sit down and take a look at putting together a regimen for you. Nutan Sharma: Dystonia is a neurologic condition where your brain is sending out signals that cause muscles to contract uncontrollably. The region of the brain that is affected is actually in the center of brain. I would like to do a neurologic exam. Can you take this finger and touch you nose? Can you feel it on both sides? Alex: No. Nutan Sharma: Where am I? Alex: I do not know. Nutan Sharma: How much can you turn and look over your right shoulder? One of the things that strikes me as I watch your movements, there is a prominent part where your head is pulling back. Everything is kind of pulled out of alignment. We have success in some people by using a brace that helps to provide postural support. Alex: You are the first doctor to ever say anything like that to me, which is so refreshing. It really is. Montel: And this one of the things I think it's been so good being here and being with you is that this piece of knowledge.