We’ve carefully selected these blogs because they are actively working to educate, inspire, and empower their readers with frequent updates and high quality information. If you would like to tell us about a blog, nominate them by emailing us at firstname.lastname@example.org!
When you are diagnosed with Parkinson’s disease, your entire life changes. Parkinson’s affects some 1 million people in the United States, according to the Parkinson’s Disease Foundation. Many of these people need support coping with the changes and challenges that come with the condition.
Parkinson’s symptoms can start as a small tremor, but can develop into debilitating and uncontrollable movements of the body, paired with stiffness and instability that impairs balance and coordination.
There is currently no cure for Parkinson’s, but as with any chronic condition, there is a wealth of information and support to be found online. Here are the best Parkinson’s disease blogs of 2016.
Aging and Parkinson’s and Me
John Schappi was diagnosed with Parkinson’s in 2009, at age 80. We love John’s blog because it’s about living life to the fullest — whether that means traveling, going to the ballet, or celebrating the friendships he’s made through Alcoholics Anonymous. He also talks about what products he uses to deal with the side effects of Parkinson’s, such as insomnia, and shares and discusses helpful blog posts and information.
Actor Michael J. Fox is probably the most well-known face of Parkinson’s. His foundation is committed to funding research that will help to find treatments, or even a cure, for people living with the disease. As you might expect, their blog is a great place to learn all about recent developments in research, but you can also read interviews with doctors and touching patient stories, as well as listen to helpful podcasts.
Connect on Twitter: @MichaelJFoxOrg
Stephanie Parker is a homeschooling mother who was diagnosed with Parkinson’s disease at age 42. Her blog is a place to discuss parenting, recipes, homeschooling, music, and of course, Parkinson’s. Her family also copes with Asperger’s and gluten intolerance, so the themes of perseverance are not only tied to her own disease. We like the blog because of the array of topics, and because Stephanie proves that, though Parkinson’s may slow you down at times, it doesn’t have to stop you from living.
Connect on Twitter: @TheJourney_1
My Parkinson’s Journey
Terri Reinhart is an artist and writer, and she just happens to have Parkinson’s disease. Her blog is an insightful, thoughtful, and often humorous look at what it’s like to live with the condition. Some of the most popular posts include one on the unique communication struggles between doctors and patients with Parkinson’s, and another in which Terri tries to identify people with Parkinson’s as they pass by in the mall.
Connect on Twitter: @TerriReinhart
Off and On
This blog began as a platform for sharing meeting times for the Anchorage Parkinson’s Disease Support Group. Today, it’s that and much more. Maintained by Peter Dulap-Shohl, the blog is now a “therapeutic hobby,” where you can read about Pete’s life with the disease, as well as learn about symptoms, download charts that can help you manage your medications, and much more. Because the blog’s been active since 2008, and because the writing is so entertaining, you could literally spend hours here.
On Being a Christian with Parkinson’s Disease
Many people living with chronic disease turn to their faith for solace and comfort. Most of the posts on Anna’s blog are reflections on living with Parkinson’s and how her faith applies directly to every symptom, struggle, or issue at hand. She uses the Bible to find answers for the challenges both she and other people in her life face, finding inspiration and solace.
Parkinson’s disease is no laughing matter — or is it? Bev Ribaudo won’t let Parkinson’s get in the way of laughter. Many of her stories will make you laugh, and she posts roundups of local symposiums and Parkinson’s events as well. You’ll also find book recommendations, reflections on her past, and thoughts on what it’s like living with Parkinson’s today.
Sherri Woodbridge was diagnosed with young-onset Parkinson’s disease at age 44, and has been posting on Parkinson’s Journey since 2007. She blogs to encourage and assure others that they are not alone. Recent posts include a moving and hopeful short story, set in the year 2116, when perhaps a cure will have been found and put to use. Also here are tales of Sherri’s interactions with doctors, her advice and reflections, and even some poetry.
Connect on Twitter: @slwoodbridge
Robert Rodgers established Parkinson’s Recovery in honor of his mother, who died from a stroke in 1998. Rodgers believes that the plethora of prescription medications she was taking contributed to her death, and writes this blog in an effort to educate Parkinson’s patients on all of their treatment options. He writes about the pros and cons of different alternative therapies, talks about recent research, and shares inspiring stories and letters from readers.
Parkinson’s Today Blog
This blog is run by the National Parkinson Foundation, a nonprofit organization that raises money as well as awareness about the disease. Bloggers include doctors, physical therapists, and licensed clinical social workers, who use their expertise to detail the latest developments in the world of Parkinson’s, as well as tips and education on living with the disease. One series spotlights what each member of a comprehensive care team does, while another rounds up the latest research and news.
Connect on Twitter: @ParkinsonDotOrg
The PD Gardener
The OD Gardener likes to write about life, and write about life he does. When you have some down time, brew a pot of tea and dig in to his reflections on everything from curling, to the nature of nicknames, to gardening. His posts are humorous, long, and unashamed.
Shake, Rattle and Roll
Kate Kelsall was diagnosed with Parkinson’s in 1996, and has been blogging about it since 2006. She chronicles her daily life with the disease — including both her struggles and triumphs — and she does it with honesty and a positive spirit. On her blog you’ll find checklists to help you identify red flags regarding your parents’ health, interviews with other people who have Parkinson’s, and her own medication and meal schedules.
Shaky Paws Grampa
Kirk Hall’s writing doesn’t begin and end with Shaky Paws Grampa. He’s the author of a few books as well, including a children’s book inspired by his relationship with his eldest grandson, also called Shaky Paws Grampa. He’s started support groups and is an advocate for Parkinson’s awareness and advancement. His blog is a place for personal stories, Parkinson’s information, conference information, and more.
Andy Daly has Parkinson’s, and this is where he comes to escape. Like he says, this isn’t the place to come if you want to read about treatments and research. But what you’ll find instead is humor, short stories, and reflections on Andy’s life and his hobbies and interests, like David Bowie and traveling the British countryside. For a steady stream of entertainment, this could be the blog for you!
Connect on Twitter: @andydaly25
A Soft Voice in a Noisy World
Young-onset Parkinson’s usually starts at middle age, but for Karl Robb, the blogger behind A Soft Voice in a Noisy World, it began much, much earlier. Though he was diagnosed at age 23, he believes he has been living with the disease since age 17. On his blog, Karl coaches readers to let go of anger and frustration, writes about medication management and therapeutic techniques like reiki, and celebrates the beautiful things in life.
Connect on Twitter: @asoftvoicepd
Do you know of any other great blogs about living with Parkinson’s disease? Let us know! Shoot us an email at email@example.com.