Hepatitis C is a chronic disease with a stigma. For many people, having “hep C” is a private battle. Having people and even online sources to turn to for support can provide worlds of comfort.
Hepatitis C is a liver disease that leads to inflammation of the organ. In many cases, chronic hepatitis C can eventually lead to cirrhosis, liver cancer, and even death. It is spread through infected blood, most commonly with shared needles. The Centers for Disease Control and Prevention estimate that between 2.7 and 3.9 million people in the United States live with chronic hepatitis C, and more than 30,000 cases of acute hepatitis C were reported in 2014.
Though treatable, living with this chronic disease is a long-term struggle.
The year 1999 seems like eons ago in the world of blogs, but that’s how long HIVandHepatitis.com has been in operation. This informative website provides news and information on both hepatitis C and HIV, as well as other related conditions. The site is funded by grants and features information on hepatitis C treatments, prevention, disease progression, and epidemiology.
Tweet them @HIVandHepatitis
The Hepatitis C Mentor and Support Group was started by two people with hepatitis C who wanted to make sure others had access to educational information and support while living with the disease. Their blog has evolved to not only feature posts from the founders, but from many experts. The blog is updated frequently, so you’ll be up-to-date on all the current news and research about the disease.
HCV Advocate is a place to learn all about the latest developments in research and treatment for hepatitis C, and to find the support resources you need. The blog has several esteemed contributors, and fact sheets are available in Spanish as well as English. Another great feature of this blog is the section dedicated entirely to patients who are newly diagnosed.
Tweet them @HCVAdvocate
HCV New Drug Research
For many patients living with hepatitis C, life is a never-ending attempt at finding the right medication. This blog is perfect for those who are curious about which new treatments are hitting the market, or who want more information on drugs that have stood the test of time.
Tweet them @HCVNEWDRUGS
HEP Magazine’s Blog
HEP Magazine’s blog is frequently updated with posts from top bloggers, including many of the bloggers we’ve listed here. Because of the many sources, you’ll find posts that speak to all aspects of living with hepatitis C, from medical and diagnostic to practical living and mental health topics. The sheer volume and variety of information here make it worth a bookmark.
Tweet them @hepatitismag
I Help C
Karen Hoyt is a hepatitis C survivor living with the long-term effects of the disease. She started this blog because when she was initially diagnosed, she found that some of the most useful support she received was from virtual strangers on the internet. As with many people affected by serious illness, her family and friends were there for her but didn’t understand everything she was going through. People she connected with online did. This blog is a place for people with a hep C diagnosis to go to for support and a friend.
Life Beyond Hep C
Connie Welch is a sheep wrangler and hepatitis C survivor, having lived with the disease for about 20 years. The Texan started this blog as a way to lend support to patients living with the disease, and the people who love them. Though she writes this faith-based blog from a Christian perspective, anyone whose life is affected by hepatitis C will find value in the information and advice she offers.
Tweet her @ConnieMWelch
Author and advocate Lucinda Porter doesn’t just know about hepatitis C from her years of research, but from living with the disease for 25 years. Porter has written two books on hepatitis C, speaks out to raise awareness about the disease, and was a research nurse in the hepatology division at Stanford University. On her blog, you’ll find everything from research news to simple tips for helping you live with hepatitis C.
Tweet her @LucindaPorterRN