We’ve carefully selected these blogs because they are actively working to educate, inspire, and empower their readers with frequent updates and high quality information. If you would like to tell us about a blog, nominate them by emailing us at firstname.lastname@example.org!
For many people living with Crohn’s disease, life can involve urgent trips to the bathroom as well as pain. For some, Crohn’s can even be deadly. Living with a chronic disease like this can be difficult and isolating, and support communities — even online ones — can help.
Almost 700,000 people in the United States have Crohn’s disease, an inflammatory bowel disease. The disease causes inflammation in the digestive system, which can lead to a variety of symptoms, like diarrhea, bloody stools, pain and cramping, changes in appetite, fever, fatigue, perianal pain, and constipation.
In severe cases, the disease can lead to bowel obstruction, fistulas, and ulcers.
To call Crohn’s disease flare-ups uncomfortable would be an understatement. But many people find comfort in the following blogs.
Ali on the Run
Crohn’s disease doesn’t have to be debilitating. Ali, the blogger behind Ali on the Run, serves as inspiration to everyone — even those who don’t have an inflammatory bowel disease. If you couldn’t tell from the title, Ali is a bit of a runner, as well as a writer and editor, and her energy and spirit leap from the page. She also has a very active and fun following, as seen in all of the comments on her posts.
Tweet her: @AliOnTheRun1
The Crohn’s Colitis Effect
Crohn’s disease frequently affects children, and the inspiration behind The Crohn’s Colitis Effect is just 9 years old. Domenic began showing symptoms of Crohn’s at just a few months old. The blog, written by his father, Frank Garufi, Jr., is an effort to raise awareness about Crohn’s in general, and to gain support for Domenic. The blog also hosts a podcast, IBD Round Table Discussion, which is worth checking out.
Tweet them: @CrohnsEffect
For people with Crohn’s, traveling can be difficult. The constant worry about finding the nearest restroom can make it difficult to kick back and enjoy a vacation. Written by a woman who has been living with Crohn’s for 21 years, Crohnie Travels can help with that. It’s filled with relatable stories and actionable tips for packing and traveling.
For readers who want to know about current Crohn’s research and the science behind inflammatory bowel disease, the Crohnology Blog is a great resource. Run by Duncan Cross, this blog is the “smart and skeptical voice” of inflammatory bowel disease (IBD). The goal of the blog: to be a community where people with IBD can collaborate and share their information, struggles, and triumphs.
Inflamed & Untamed
Sara is young and vibrant, but has been dealt a tough hand when it comes to her health. She’s dealt with Crohn’s disease for many years, and had numerous surgeries, including an ostomy and having her large intestine removed. Now, she blogs and speaks about advocacy on “Inflamed & Untamed.” There you’ll find inspiring stories, medical information, and even a store to support the effort.
Tweet her: @Sara_Ringer
Jenni Schaeffer’s personal blog, Jenni’s Guts, is a close look at what it means to live with Crohn’s — complete with all of the frustrations and embarrassing moments. Part of Jenni’s appeal is she doesn’t hold back, and for people suffering with Crohn’s disease and the symptoms most people would rather not talk about, her candor and wit is more than refreshing.
The Lady Is a Tramp
Tammy is a former trial attorney, but now travels the United States in an RV with her dog and cat companions. Her most constant companion, however, is her Crohn’s disease. The Lady Is a Tramp is a remarkable blog, whether you’re interested in Americana, travel, pets, or finding kinship with someone else who has the condition. To find the posts specific to her health, navigate to “The Constant Companion” in Tammy’s list of topics.
Tweet her: @LadyTrampBlog
Leaving the Seat Down
Vern was a competitive figure skater before Crohn’s disease came in and changed everything. He’s been living with the disease sine 1988, and frequently updates his blog — Leaving the Seat Down — with stories of struggle, as well as food tips and humor, like his Crohn’s update of “Twas the Night Before Christmas.”
My Not So Normal Life with Crohn’s Disease
Sarah Brocker, the blogger behind My Not So Normal Life was diagnosed with the condition in sixth grade. Now, nine years later, she’s undergone five surgeries as well as an ostomy. A young professional in the city, she blogs about balancing the disease with her career and active lifestyle.
Tweet her: @NotSoNormalLife
Heidi Skiba is a 43-year-old with a major love for outdoor adventure. Her blog, Ostomy Outdoors, is part travel-adventure, and part Crohn’s support. Her photographs and illustrations are worthy of magazine coverage, and her courage certainly is, too. From hiking tips to answers to tactical questions like, “How do I switch out my ostomy bag in the wilderness,” this is the blog to go to.
For many people with Crohn’s, different foods qualify as a “trigger” that can set off symptoms. But some may find help through dietary changes. SCD Lifestyle promotes a specific carbohydrate diet. The diet is said to lessen inflammation in the body by eliminating processed foods, grains, and sugars. The website and blog are a good source of recipes, podcasts, and success stories.
Tweet them: @scdlifestyle
The Stolen Colon
Stephanie Hughes was diagnosed with Crohn’s disease at the age of 13. Now, she’s married with a child, and an ileostomy. Like many people with Crohn’s, Stephanie went through numerous hospitalizations before deciding that ostomy surgery was the right move. For her, the decision was a positive one, and now she blogs at The Stolen Colon to share her journey.
Tweet her: @smlhughes
In 2003, young Jessica Grossman underwent ostomy surgery and it changed the quality of her life dramatically. Ostomies are something very few people want to have to deal with, but for those with the most severe cases of Crohn’s disease, they can be a life-changer. Uncover Ostomy is one woman’s journey to speak up about the stigma of having an ostomy — a port that carries waste from your digestive system to a bag outside of your body.
Tweet her: @uncoverostomy
Let us know about other top quality Crohn’s disease blogs by emailing email@example.com!