We’ve carefully selected these blogs because they are actively working to educate, inspire, and empower their readers with frequent updates and high quality information. If you would like to tell us about a blog, nominate them by emailing us at firstname.lastname@example.org!
Alzheimer’s disease is a type of dementia that is characterized by memory loss and behavioral changes. The cause is unknown at this time, and it has no cure. Most of its victims are age 65 and older, though early onset Alzheimer’s can begin in the 40s.
Alzheimer’s erases memory, often taking with it one’s sense of identity. It’s the only major cause of death in the United States that can’t be prevented, cured, or even slowed down. But patients aren’t the only ones affected. People with Alzheimer’s require constant care, which can place a heavy emotional and financial toll on a caregiver, in addition to draining away the personality of someone they love.
Fortunately, the last 15 years have brought much good news about helpful treatments, management strategies, and possible methods of prevention and delay.
Until there is a cure, community support and trustworthy information are vital to both patients and their families. These awarding-winning blogs provide just that. Read on and explore how they can help you through your Alzheimer’s journey.
The ADCS Blog
The Alzheimer's Disease Cooperative Study (ADCS) was founded in 1991 by the National Institute on Aging and the University of California, San Diego. The group’s goal is to find, develop, and test treatments for Alzheimer’s. It particularly seeks information on those treatments that pharmaceutical companies are not pursuing. Their blog reports on the group's findings, as well as breakthroughs made by other institutions. While scientific information can seem challenging at times, the writing here is always easy to understand.
Alzheimer’s Association’s Blog
The Alzheimer’s Association is a leading nonprofit devoted to funding Alzheimer’s research. Their blog is written by people who have Alzheimer’s, are caring for people who do, or have family members and loved ones affected by the disease. Posts range from giving thanks to Alzheimer’s caregivers to personal stories about what it’s like to watch your parent live with Alzheimer’s, to questions and answers with experts in the research field.
Tweet them: @alzassociation
Alzheimer’s & Dementia Weekly
For Alzheimer’s news, insights, and helpful information, this blog is an essential resource. You’ll find tips on how to manage “sundowning,” the tendency of Alzheimer’s behavioral symptoms to increase at day’s end, as well as financial advice for caregivers, stress-relieving techniques for emergencies, inspirational quotes, and the latest news from the world of Alzheimer’s research.
Alzheimer’s Disease and Dementia Advice from Verywell
Come here for insight on how to address caregiving questions, like when to talk to an Alzheimer’s patient about giving up his or her right to drive, or how to keep patients from wandering away from familiar surroundings. Resident expert Esther Heerema, M.S.W., posts regular discussions about the latest news on possible Alzheimer’s prevention strategies like diet and exercise.
Alzheimer’s Front Row
This is the companion website to Bob DeMarco’s Alzheimer’s Reading Room. Here, you’ll find easy-to-access news pieces on disease research, Alzheimer’s tests, and clinical trials (medical tests that allow patients to participate in treatments that may help, but haven’t been released to a wider market). Search Front Row’s posts to find information on broader topics like neurology and tips on patient care.
Alzheimer’s Reading Room
Bob DeMarco founded the Alzheimer’s Reading Room in 2009 when he figured out that most caregivers were plunged into their roles with little or no background in the condition. This is an archive of simple, straightforward information defining Alzheimer’s and its symptoms and treatments. It’s a perfect first stop for anyone diagnosed with the disease and for caregivers. DeMarco’s positive tone touches on hopeful medical developments and also reminds us that people are capable of more than we might think.
Alzheimer’s erases memories and takes the power of speech with it, preventing people with the disease from expressing their needs and wants. Alzheimer’s Speaks is a mouthpiece for those silenced. It also serves as an outlet for caregivers and loved ones too overwhelmed to have their say. Blogger, patient advocate, and spokesperson Lori La Bey cared for her mother through progressive memory loss for 30 years. Her mission is to tackle the assumption that aging is about losing ability and capacity. To support caregivers, she wants to “shift caregiving from crisis to comfort.”
Tweet her: @AlzSpks
Dealing with Alzheimer’s Blog
Blogger Kris was diagnosed with early onset Alzheimer’s at age 46. Now 60, she is still blogging away, providing rare insight covering what it means to live life with dementia. It’s not easy, and Kris does not shy from saying so, discussing what it’s like to have a panic attack in the gym, and her recent struggles with vertigo. But she is living and important proof that, as difficult as it may be to bear, an Alzheimer’s diagnosis does not mean that life is over.
Dealing with Dementia
At the top of Kay Bransford’s blog is a family photo. The picture is a reminder that Alzheimer’s affects more than just the person who has it. Bransford, the primary caregiver to her parents, offers practical advice, like how to manage financial and medical information, how to cope with caregiver guilt, and how to maintain sibling and family relationships during even the most stressful times.
Tweet her: @Kay_Bransford
Semantic dementia is a disease that affects the brain’s right temporal lobe, which is where language functions are stored. The disease diminishes accurate language use and usually ends with total loss of speech. When Cassandra Jones’ mother was diagnosed with semantic dementia in 2012, she found that there wasn’t that much information available online to help either of them. She launched Dementia Diaries as a form of therapy during her caregiving. She also founded the DEANA Foundation, a nonprofit that awards grants to families to help them cover the caregiving costs of dementia.
Early onset Alzheimer’s only affects about 5 percent of people who develop Alzheimer’s and begins prior to 65 years of age. When it happened to the husband of blogger Linda Fisher in 2008, she was inspired to launch a blog that provides wisdom, support, heartfelt stories, and practical advice for people who have Alzheimer’s as well as their caregivers.
ElderCare at Home’s Blog
One of the most difficult decisions Alzheimer’s patients and their families face is whether to remain at home or whether to move into a memory care or other specialized facility. ElderCare at Home’s blog helps support aging at home by providing information and resources to people with Alzheimer’s and their caregivers. If you only have time to stop by every now and then, be sure to check out the blog’s “Tuesday Tips for Caregivers” for practical support.
Tweet them: @ElderCareatHome
The Fisher Center Community Blog
The Fisher Center at The Rockefeller University is a nonprofit scientific facility that is devoted to finding a cure for Alzheimer’s disease. The center’s research is conducted under the direction of Dr. Paul Greengard, a neurologist who was awarded the Nobel Prize in medicine in 2000. The institution’s community blog provides an outlet for caregivers and people with Alzheimer’s or dementia. The blog allows them to give voice to their personal experiences. Look here for inspiration, information, and a much-needed dose of humor.
Tweet them: @FisherCenter
Help! Aging Parents
The mission statement is in the name. Susan, a professional counselor who cared for her aging parents and mother-in-law throughout their illnesses, now writes and consults for others who are in the same position. Susan supports from a coaching perspective, prompting adult children caregivers to ask themselves questions like, “Is this best for me or my parent?” Her aim is to help them develop ways of thinking that will allow them to make the best decisions, even in times of crisis.
Living in the Shadows of Alzheimer’s
When Sheri’s husband, Bob, was diagnosed with Alzheimer’s and frontal lobe dementia, she felt as if a new and unwelcome visitor had permanently moved in with them. She named that visitor “Al.” Her blog posts chronicle what it’s like living with both her husband and his uninvited guest. Ranging from one-sentence anecdotes to poems, each blog packs an emotional punch.
Living with Alzheimer’s
Joe made an official goodbye to this blog in September 2015 after having shared his experiences with Alzheimer’s since 2006. Two brief posts after the fact have promoted a documentary film on the condition that Joe helped fund. The blog still stands as a useful, personal archive, filled with helpful links and information. Joe’s committed family is shown in a large family photo at the top of every page, reminding readers how critical it is for both Alzheimer’s patients and caregivers to have loving, practical support.
The Long and Winding Road…
Her mother’s 10-year battle with Alzheimer’s inspired blogger Ann Napoletan to launch a second career as an advocate for those with dementia as well as for their families. Through her blog, she seeks to support others with news on research and practical tips. Napoletan writes frequently for other publications, too, and is active on Facebook, where she is reaching a new generation of caregivers with vital Alzheimer’s information and news.
Tweet her: @alzjourney4m
Memories from My Life
Blogger Pat White has been building a community of readers since 2009. That's when she began caring for her mother, who was diagnosed with Alzheimer’s in 2007. Her tips and insights for adult children — like a poster she made for her mother featuring images of family members, to help trigger happy memories — are especially helpful for those whose loved one resides in a memory care community.
Sharing My Life with Lewy Body Dementia
Lewy body dementia is a brain disease that causes memory loss similar to what occurs with Alzheimer’s, along with difficulty moving and maintaining balance. This blogger relates his experiences living with the condition in brave, feeling prose. A blogger since 2009, he writes about the changes in his own behavior, thinking, and physical condition, and how he and his wife and medical team have managed. This is excellent reading for a very personal view of the toll of dementia.
Truthful Loving Kindness
This blogger changed her legal name to Truthful Loving Kindness in order to remind herself and others of why it’s important to be and exhibit all three traits. Diagnosed with mild cognitive impairment (MCI), which is often a predecessor to Alzheimer’s, she shares the realities of her symptoms and how she manages them. She also regularly discusses the role that spirituality plays in her daily life.
You can nominate a blog for next year’s list by emailing email@example.com.