The Best Alzheimer's Blogs of the Year

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  • Affected by Alzheimer’s

    Affected by Alzheimer’s

    Alzheimer’s disease affects millions of people: patients and the people who care for them intimately and professionally. The disease is associated with memory loss and neural and physical decline. But perhaps one of its most common symptoms is the feeling of deep isolation shared by patients and caregivers.

    The following blogs seek to eradicate this particularly cruel symptom. Read them regularly for the information and inspiration this difficult journey demands. 

  • Alzheimer’s Reading Room

    Alzheimer’s Reading Room

    Alzheimer’s Reading Room is a one-stop resource that’s consistently voted the number one blog by notable outlets like the New York Times. Editor Bob DeMarco cared for his mother, Dotty, as she bravely fought Alzheimer’s in her final years. He continues to add to the more than 4,000 video and editorial items stored on the site.

    Topics include just about anything that will help, educate, and support caregivers: from those just beginning their care-journey, to those who are more familiar with the course of the disease. 

  • Alzheimer’s Front Row

    Alzheimer’s Front Row

    This companion site to Alzheimer’s Reading Room provides Bob DeMarco’s wisdom and wit on life with this difficult condition. Alzheimer’s Front Row touches on news and developments in the medical community. Its primary focus is the encouragement and support of caregivers and their loved ones.

    DeMarco includes inspirational videos of Dotty and the remarkable things she continued to do despite her diagnosis. The editor punctuates the site with quotes, such as: “There is no substitute for the Love of a caregiver.”

  • Caregiving With Purpose

    Caregiving With Purpose

    Caregiving With Purpose is a bright, uplifting blog by Dr. Ina Gilmore. Here she presents and analyzes the latest Alzheimer’s news from the perspective of decades of professional experience. Features include long-distance caregiving, crafts for caregivers and patients, and balancing costs with responsibilities.

    Dr. Gilmore believes that caregivers can thrive in their roles. Among her tools is the made-up character Lisa, whose story is used to illustrate challenges caregivers face. Tap into additional resources like podcasts and an annual telesummit to support caregivers.

  • About Alzheimer’s

    About Alzheimer’s

    About Alzheimer’s provides easy-to-read, up-to-date info on all aspects of this debilitating condition. Social worker Esther Heerema brings together news, analyses, and insights from her nearly two decades of work with patients and their families.

    The blog features fresh information on Alzheimer’s and other forms of dementia like Lewy body dementia and Parkinson’s disease. Heerema also responds to reader comments and questions. 

  • Silverfox

    Silverfox

    Silverfox has reported on his experiences with Lewy body dementia in simple, moving language since 2009. This diary isn’t just a record-keeping blog, but a heartfelt and insightful look into the patient experience. 

    Where did his disease come from? Where will he and his wife of 36 years live as it progresses? And what will happen if he once again takes his poodle’s prescription medicine rather than his own? Join Silverfox as he explores these questions and more. 

  • Had a Dad

    Had a Dad

    Bert Piedmont cared for her parents during the many years of her father’s decline into Alzheimer’s. She began Had a Dad when the diagnosis was made in 2004, making her surely one of the longest-lived writers of the caregiver’s experience.

    Piedmont’s voice is as strong as her love was unyielding. Had a Dad fully evokes the pain and injustice she and millions of others feel. Since her father’s passing, she has focused on Alzheimer’s in the news, and has begun another caregiving journey for her aunt.

  • Early Dementia Support

    Early Dementia Support

    Being diagnosed with frontotemporal degeneration (FTD) at age 45 cleared up years of misdiagnoses for blogger Howard Glick. But it also brought the threat of a life-changing condition.

    Glick writes candidly about his daily life, including such comic interludes as storing his reading material in the freezer, in Early Dementia Support. Although he’s angry about his fate, Glick is determined not to go quietly into the fog of dementia. He’s also every bit as determined to bring hope and help to patients like him. 

  • Blog.alz.org

    Blog.alz.org

    The Alzheimer’s Association is home to this informative and helpful blog. Its mission is to provide the most up-to-date information on the disease and best practices in caregiving. It also gives a voice to the millions of people affected by Alzheimer’s.

    The blog team is made up of a variety of seasoned professionals in medicine and medical policy. News postings provide some of the best legal and policy information available. The blog is also a place for those who contribute to fundraising efforts in sponsored walks and runs to tell the stories. 

  • Alzheimer’s Care at Home

    Alzheimer’s Care at Home

    This blog believes patient care can—and perhaps should—be managed by keeping the patient at home for as long as possible. To that end, Alzheimer’s Care at Home offers plenty of resources.

    Training programs for caregivers include geriatric care management and Alzheimer’s/dementia-specific training. Information includes services that support in-home care in the blog’s home state of Florida, as well as telephone coaching for caregivers worldwide. 

  • Early Onset

    Early Onset

    Blogger Linda Fisher is a long-time Alzheimer’s Association volunteer and the committed caregiver of her husband. His diagnosis of early onset Alzheimer’s sent the couple into a spiral, but Fisher was determined that its only direction not be downward.

    Fisher applies good humor and excellent writing skills to her thoughts on the disease, loss, love, and therapeutic practices for caregivers and patients in Early Onset. Fisher has published many books on her pet topics and is a sought-after speaker throughout the Midwest. Her optimistic, caring tone is tonic to any reader.

  • Alzheimer’s Speaks

    Alzheimer’s Speaks

    So many patients decline into the silence of their disease. Alzheimer’s Speaks is committed to giving a voice to them and the people who love them. Blogger Lori La Bey writes with energy, enthusiasm, and experience. She compiles the latest Alzheimer’s news and medical developments, as well as moving stories of love undiminished by silence.

    La Bey’s regularly broadcast radio show, Alzheimer’s Speaks Radio, is stored on the site. And guest bloggers address the hurt and hope of the patient-caregiver experience. Check out this blog for a wide view of the personal and medical aspects of this devastating disease.

  • Memories from My Life

    Memories from My Life

    Get out your handkerchief. Memories from My Life will move you to tears with the depth of its love and commitment. Pat White has cared for her mother since an Alzheimer’s diagnosis in 2007 confirmed two years of concerns.

    Several years ago, White created a poster as a memory aid for her mother. It displayed her mother’s full name and many pictures of special moments from the past. The poster collected such praise and attention from readers that White created a website where anyone can design their own “memory poster.” This kind of simple, yet generous act informs the touching tone of the blog.

  • Sherizeee

    Sherizeee

    Readers may most enjoy Sherizeee on a daily basis. Pop by to read Sheri’s prolific posts about life with her husband, Bob, and his disease, “Al,” a new and unwanted visitor in their home.

    Sheri is upfront about the unpleasantness of Al coming between her and the love of her life. Loneliness is part of life for her, as it is for most Alzheimer’s caregivers. But Sheri never hesitates to count her blessings. She has the love and assistance of her two daughters, and the moments of sweetness with the man she won’t stop loving. 

  • Cleaning House Book

    Cleaning House Book

    A diagnosis of Lewy body dementia (LBD) includes Parkinson’s disease and dementia with Lewy bodies, the proteins that cause Parkinson’s. This condition affects memory and mobility. Cleaning House Book offers a close view of the LBD patient and caregiver experience.

    Joy Walker, who cares for her father, began blogging in 2009. The blog is a vast collection of information and personal insight on dementia and the caregiver’s role. It includes plenty of helpful resources and news information, and is a must-read for the next generation of caregivers.

  • Minding Our Elders

    Minding Our Elders

    Minding Our Elders focuses on best practices in professional and personal caregiving for Alzheimer’s patients. Topics include thoughtful information on difficult subjects like when is it necessary to consider a care facility. Some are more difficult, like when to engage hospice services (the answer is much sooner than you’ll be needing them).

    Blogger Carol Bradley Bursack is a noted author of the book Minding our Elders. She has also written numerous articles on Alzheimer’s, dementia, and caregiving. Her blog provides a confident, caring voice for patients and the people who love them.

  • Alzinfo.org/blogs

    Alzinfo.org/blogs

    The Fisher Center for Alzheimer’s Research Foundation sponsors Alzinfo.org/blogs. The site provides helpful, current information on the disease and caregiving. Posts can be personal—like guest blogger and patient Norm McNamara’s moving poem in defiance of his condition. They can also be very informative, such as expert tips on Alzheimer’s and the holidays. The blog also includes helpful information on recent news and upcoming events.

  • Helping Parents Age Well

    Helping Parents Age Well

    Helping Parents Age Well isn’t just about helping our parents. The information and insight in these pages is useful to anyone who anticipates living beyond midlife. Key thoughts like “Will these actions I’m about to undertake empower or diminish?” and “Does the quick fix harm later goals?” inform all of blogger Susan’s writing. Her focus on values and long-term solutions makes for a good life-coaching guide and regular reading.

  • Alz.org

    Alz.org

    The main site of the Alzheimer’s Association, alz.org presents helpful information in a regularly updated, blog-like format. The education and resources section includes everything you need to know about diagnosis, clinical trials, and caregiving tips by stages of the disease. Daily news on medical breakthroughs, health policy, fundraising information, and job and volunteer opportunities are also addressed. Patients and caregivers alike will get meaningful help from this complete site.

  • Alzheimer’s Weekly

    Alzheimer’s Weekly

    Videos are especially prominent in Alzheimer’s Weekly's collection of personal and professional information. And the word “weekly” is not entirely accurate. Every page contains much more than a week’s worth of good insight.

    Blog editor P. Berger is determined to help patients and caregivers maintain their dignity. That commitment has driven the blog for six years. Check it out for moving short films like “Son, What is That?” and for tips in video form like “Don’t Tell Me to Calm Down!” The blog also includes details on healthy eating and the kinds of diet that might support better brain function.

  • Living with a Thief Named Lewy Body Dementia

    Living with a Thief Named Lewy Body Dementia

    Kathy Lowrey and her husband had been married over 25 years when he was diagnosed with the brain disease Lewy Body Dementia (LBD). LBD is the second most common type of dementia. It affects emotions, movement, and thinking, and it often causes delusions and hallucinations. Living with a Thief named Lewy Body Dementia is the profoundly moving blog of the last five years of the Lowrey’s life together.

    “Hubby,” as Lowrey refers to him, passed away in February 2014. If you’re a caregiver, Lowrey’s knowledge of LBD’s symptoms and complications will help you almost as much as her beautiful writing about loving “till death do us part.”

  • Taking Good Care

    Taking Good Care

    Alzheimer’s. Dementia. Memory loss. These are haunting words for patients and the people who love them. The shock of hearing them may never wear off, but having the best resources at hand is critical.

    Each of these blogs is governed and guided by writers and researchers who care deeply about the fate of Alzheimer’s patients, that they’ve devoted their lives to helping. Read and be comforted: you are not alone.

References:

·         Lewy body dementia: Definition. (n.d.). Mayo Clinic. Retrieved May 5, 2014, from http://www.mayoclinic.org/diseases-conditions/lewy-body-dementia/basics/definition/con-20025038

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