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This Week in Crohn’s: September 28, 2012
This week’s Crohn’s update encourages you to embrace poop (fecal transplants and chronic constipation causing incontinence), two breakthroughs in IBD genetic treatments and much more.
We’ve Already Explored Ingesting Parasite Larva, So It’s Only Logical to Explore the Poop Transplantation for C. diff Treatment
Back in April, the Huffington Post along with a slew of other news outlets reported on a Canadian man who had given himself a fecal transplant after a prolonged battle with Clostridium difficile (C. diff). Over the past few weeks we’ve written about quite a few articles regarding new IBD treatments embracing parasite larva and the discussion of dirtying up our internal system in order to restore balance. So the latest Huffington Post video article about fecal (poop) transplantation (whatever you want to call it) takes a light-hearted approach toward FMT, because of a recently released study in the Oxford Journals that explored patient attitudes toward FMT for C. diff infection.
Get More Acquainted with Fecal Microbiota Transplantation
If you had a gut infection that causes a form of colitis, most doctors would first try fighting it with antibiotics. But, if you had IBD and were dealing with the infection known as Clostridium difficile (C. diff),it would be more than likely that antibiotics would make matters worse for you. It’s a tough infection for IBD patients to battle. But there is hope. It’s a little gross, but it’s proven to work. Meet Fecal Microbiota Transplantation (FMT).
Attention Parents: Bed Wetting and Incontinence Could Be Caused From Chronic Constipation. A Pediatric Urologist Sheds Some Light on the Subject in the NYT.
A Wake Forest pediatric urologist explores the relationship between chronic bedwetting/urinary incontinence and chronic constipation. Did you know that we can be severely constipated and yet still pass stool? It’s true. The doctor came upon this determination (he’s not the only one either), after many years of working with parents whose children were incontinent. The discovery occurred during surgery when he found a grapefruit-sized mass of fecal matter sitting in the child’s rectum. He called it his Ah Hah moment. From that point on, he started looking at X-rays rather than using the traditional abdominal palpation to diagnose chronic constipation.
Now you might be thinking, “What does this have to do with Crohn’s disease or UC?” Well, both diseases although regularly connected to chronic bouts of diarrhea can also cause serious bouts of constipation. For some, this constipation can lead to emergency surgery. And this article sheds some serious light on a very overlooked symptom that is being caused by an even more serious situation.
One Canadian Hospital Is Using a Less Invasive Technique to Remove Colon Cancer and Resect Bowels for IBD
This amazing article follows one Canadian woman’s experience from pre-op into surgery to remove a cancerous polyp from her colon and then recovery; her positive attitude never wavered. Neither did that of her surgical team. The writer gives the readers a really intimate look into what happens in the surgical theater and keeps it simple and easy to understand.
Antibiotic Exposure Within a Child’s First Years Linked to Developing IBD
The culprits seem to be antianaerobic antibiotics such as penicillin and tetracycline to kill anaerobic bacteria on children of a very young age. The reason being is that the antibiotics are killing off all bacteria in the gut including the good kind. According to researchers from Seattle Children’s Hospital, puts a child in a position of an 85% risk of developing IBD. Children exposed within their first year of life were at the highest risk, and then as the age increases the risk slightly decreased.
For parents with children who are infection prone or are concerned with giving infants and toddlers antibiotics, this article is a must read. The article gives good statistics, a hardy list of the antianaerobic antibiotics and more.
According to This Report, If You Have IBD (Or Other Inflammatory Diseases) … T-Cells, Don’t Want to Live With Them, But Can’t Live With Out Them
Over the past few years, scientists have really begun to crack the code in understanding genetics and cell structure. As the scientists understand more and more about cell generation from birth of a cell to its maturity to the time it becomes a trouble maker, they are trying to create ways to manipulate it and make it “behave.” If successful, they will be able to craft therapies strictly based on the way these cells operate; more specifically T-cells, which are responsible for keeping the immune system supple, but also responsible for causing inflammation if too active. This breakthrough in molecular medicine is promising news to Crohn’s disease, UC, MS, Rheumatoid Arthritis, and many other inflammatory disease patients everywhere.
Michigan State Researchers Noticed Definite Change to Bone Marrow in Correlation to IBD
A study that was partly a labor of love from one researcher who had treated a young patient with a severe case of IBD has come about with some really interesting results with bone marrow being affected. So far the research has been performed on mice only, but from what researching physicians found is that the potential exists to treat IBD through the bone marrow. This is because the marrow produces the cells that cause the inflammation. Over the past decade several research hospitals have developed immunology programs offering bone marrow transplants for patients with severe Crohn’s disease and UC, but this new approach could be the way for patients to receive a less invasive treatment.
The New York Times Gives a Beautiful Send Off to IBD Crusader Jennifer Jaff
Jaff passed away at the age of 55 due to complications of Crohn’s disease. Jaff was a lawyer with a long history of fighting for the underdog, those who could not fight for their selves. Battling Crohn’s disease since her teens, Jaff had a unique perspective that many lawyers specializing in disability law did not. A brilliant woman filled with compassion and passion for equality, Jaff was the founder of Advocacy for Patients With Chronic Illnesses. If you are unfamiliar with Jaff, or her name sounds familiar, I encourage you to read this piece. She never gave up fighting… for herself and for others.
Looking for Ways to Raise Awareness for IBD, Help Raise Funds for a Cure, and Meet Others Who Go Through the Same Trials You Do? Get Involved!
Here is a list of events you can get involved with to help raise awareness, funds and endorphins:
Get Your Guts In Gear (GYGIG)
Each ride averages 70 miles a day and has 2 overnight camps. During the Ride, you will receive support from GYIG staff and an all-volunteer crew. You will also get to participate in an opening ceremony, as well as be provided with meals and route support, including fully stocked rest stops, sweep vehicles, and baggage transport between camps. In order to participate in the 2-day long ride, the requirements are an $85 registration fee and fundraising of at least $1,250. For more info you can call 1-718-875-2123 or e-mail the GYIG folks at email@example.com.
Team Challenge is the CCFA’s endurance training and fundraising challenge. Participants can run or walk 13.1 miles or train for a triathlon or cycling event while helping to find a cure for Crohn’s disease and UC. Visit the http://www.ccteamchallenge.org/ page to determine which event you’d prefer to participate in and then go from there. If you aren’t sure about forming your own team, that’s okay they can help hook you up with one. Pretty cool right?
This is another CCFA event involving walks held all over the nation. One of the great things about this event is that is usually held in the same place at the same time, every year. This means that participants can fundraise all year long; up until the very day of the walk. The CCFA provides team captains and their fellow walkers with fundraising ideas and support. So if you want to go big on your fundraising efforts you will have the help of the CCFA to guide you. To learn more about the Take Steps Walk visit their FAQ page or fill out their Request More Information Page.
Have a favorite charity that we didn't mention? Send us your suggestions at: firstname.lastname@example.org