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CCFA Partners: Research by the People, for the People

Unique opportunity for IBD patients to participate in a valuable research project.

By Andrew Tubesing, MS | Published Jul 19, 2011

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Medical lab work. The Crohn’s and Colitis Foundation of America has recently announced a new ground-breaking research initiative and invites IBD patients to participate. The CCFA Partners project, which collects information directly from participants in an online survey, will continually solicit follow-up information, allowing researchers to better understand the disease over time.

Two key components set this project apart from traditional medical research, according to the CCFA press release. Rather than sample a small group, this study aims to involve more than 10,000 patients, and it will follow them over an extended period of time. The CCFA Partners project will collect information at the initial stage and repeatedly every six months. There is no cost or obligation to the patient. Participants can sign up easily online and can opt out at any time.

This is truly a unique opportunity to participate in a valuable research project. In fact, the more patients that join in, the more successful it can be. Sometimes we wonder what we can do to make a difference… this is one opportunity that stands to help us all, and it’s as easy making a few mouse clicks. For more information and to get started, visit ccfapartners.org.