Tourette Syndrome Health Article

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Treatment

Although there is no medical cure for Tourette syndrome, medications can relieve many of its symptoms. Currently, the medications of choice for the suppression of tics are antihypertensives, notably Catapres, which reduces tics by 60% in most patients with only minor side effects. Related drugs that have proven effective in tic suppression are Tenex, another antihypertensive, and Klonopin, an antianxiety medication. Another class of drugs, the neuroleptics (including Haldol, Orap, and Prolixin) are even more effective than antihypertensives in suppressing tics, but for most children their advantages are outweighed by side effects, including concentration and memory impairment, weight gain, and drowsiness.

TOURETTE SYNDROME ASSOCIATION, INC.

The Tourette Syndrome Association (TSA) is a national voluntary non-profit membership organization whose mission it is to identify the cause, find the cure for and control the effects of Tourette Syndrome (TS). TS is a neurological disorder characterized by various motor and vocal tics, ranging from mild to severe. Members of TSA include those with the disorder, their families, and other interested and concerned individuals.

The Tourette Syndrome Association was founded in 1972 in order to disseminate information to interested individuals, health professionals and agencies in the fields of education and government and to coordinate support groups for affected individuals and their families. TSA also funds research to find the cause of TS and its ultimate cure and to find improved medications and treatments. Today its membership includes many thousands of individuals and organizations.

The activities of TSA are diverse, ranging from support and counseling to the publication of educational materials. For instance, TSA offers direct help to families in crisis situations through its National Service Response Team. In addition, the Association maintains a data base of those diagnosed with TS, sponsors a Brain Bank Program for collection of tissue needed for research, and maintains a state-by-state list of doctors who diagnose and treat TS. The Association also represents the interests of members to the government on crucial policy issues.

The Tourette Syndrome Association, Inc. has available an extensive list of publications and video tapes concerning symptoms, diagnosis and treatment options for TS discussed in detail. TSA also publishes a quarterly newsletter outlining the latest treatments, research programs and scientific discoveries.

In addition to drugs used for the suppression of tics, additional medications are used to treat other behavioral symptoms associated with Tourette syndrome. Antidepressants such as Prozac and Anafranil are effective in treating obsessive compulsive symptoms, and ADHD is commonly treated with Ritalin or other stimulants. Combining these different types of medications can be a difficult balancing act, and their effects need to be carefully monitored by both parents and physician. For example, the Ritalin used for ADHD may worsen a child's tics, and tricyclic antidepressants such as Norpramin and Anafranil may have to be considered as an alternative treatment for ADHD symptoms. Another symptom of Tourette syndrome that is sometimes treated with medication is uncontrolled aggression, which may be decreased by Tegretol or lithium carbonate. Although medications are universally considered the first line of treatment for Tourette syndrome, relaxation techniques, including self-hypnosis, can also be very helpful in reducing symptoms of the disorder, which worsen with tension. Physical activity is also an excellent way for children with TS to reduce tension and work off their extra energy.

Effects on schoolwork

In spite of the variety of possible symptoms associated with Tourette syndrome, about half of all children who have the disorder require only minor adjustments in order to function successfully in school. The rest require special educational programs to accommodate their needs. TS can disrupt a child's schoolwork in a number of different ways. Tics can make it difficult to concentrate or to perform certain tasks. Ironically, the effort required to suppress them can be just as disruptive because it requires so much energy. Tics can also interfere with the normal school experience by impeding the development of social skills if youngsters feel ostracized by their peers because of their unusual behavior. OCD symptoms also interfere with school performance because preoccupation with obsessive thoughts and the time spent performing compulsive actions make it difficult for children to concentrate on and complete their academic tasks. Children whose TS symptoms include ADHD have trouble with the organizational and concentration skills and the self-control needed for successful performance in school. Fortunately, medication helps alleviate tics and symptoms of OCD and ADHD in many children, giving them a better chance of succeeding in school. However, about 40% of children with Tourette syndrome often have additional learning disabilities that require attention, including problems with reading, math, handwriting, and spelling. In many children with TS, educational problems peak between the ages of 11 and 13 and then gradually decrease in severity. Parents of children with Tourette syndrome whose symptoms interfere with their ability to learn in a regular classroom environment should become familiar with their children's rights to an individualized education program under Public Law 94-142, the 1975 federal law aimed at insuring an adequate education for children with special needs.

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Author Info: , Thomson Gale, Detroit, Gale Encyclopedia of Childhood and Adolescence, 1998
 
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