Oculo-Digito-Esophago-Duodena... Health Article

Prognosis

Oculo-digito-esophago-duodenal syndrome results in a variety of different physical and mental signs and symptoms. Accordingly, the prognosis for each affected individual is very different.

Individuals who are affected by physical hand, head, or foot anomalies (with no other physical or mental abnormalities) have an excellent prognosis and most live normal lives.

Babies affected by ODED who have incomplete esophageal or intestinal tracts will have many surgeries and prognosis depends on the severity of the defect and survival of the surgeries.

BOOKS

Children with Hand Differences: A Guide for Families. Area Child Amputee Center Publications. Center for Limb Differences in Grand Rapids, MI, phone: 616-454-4988.

PERIODICALS

Piersall, L. D., et al. "Vertebral anomalies in a new family with ODED syndrome." Clinical Genetics 57 (2000): 444-4448.

ORGANIZATIONS

Cherub Association of Families & Friends of Limb Disorder Children. 8401 Powers Rd., Batavia, NY 14020. (716) 762-9997.

EA/TEF Child and Family Support Connection, Inc. 111 West Jackson Blvd., Suite 1145, Chicago, IL 60604-3502. (312) 987-9085. Fax: (312) 987-9086. eatef2@aol.com. <http://www.eatef.org/>.

WEBSITES

The Family Village. <http://www.familyvillage.wisc.edu>.

OMIM—Online Mendelian Inheritance of Man. <http://www3.ncbi.nlm.nih.gov/Omim/>.

Reach. <http://www.reach.org.uk>.

Dawn A. Jacob, MS