Next up in our series of interviews with the winners of our 2014 DiabetesMine Patient Voices Scholarship Contest is returning advocate Christel Aprigliano, who was with us for the 2013 event.
You may know of Christel's outstanding work establishing the first-ever weekly diabetes podcast in August 2005 called DiabeticFeed. And last year, after taking a motherhood break, she returned to the DOC (Diabetes Online Community) to start her blog, The Perfect D. You can also find her on Twitter at @ThePerfectDBlog!
Christel has been extremely busy this past year, firing up her D-Advocacy in ways we find pretty amazing. We're excited to share the latest from her today:
DM) First of all, can you recap your start with diabetes?
CA) I was diagnosed at 12 after having a virus. While I intellectually understood what the mechanics of diabetes entailed, I didn't entirely grasp the emotional roller coaster that I was strapped into without my permission. It took years for my mind to get on board with what I needed to do to stay healthy and live well with this disease.
You've been up to a lot since last year's Summit. Give us the rundown of what you've got going on?
The more you become involved in the diabetes community, the more you want to do. I've spent the past year looking at where there are gaps for resources and information and then have attempted to fulfill them. In January, I developed two things: a single page where people can review U.S. financial assistance options for diabetes supplies/medications and a comprehensive Diabetes Conference calendar. In May, I added a new conference to that calendar: The Diabetes UnConference, set for March 2015.
I spent the summer traveling to the ADA (American Diabetes Association), FFL (Children with Diabetes Friends for Life), and AADE (American Association of Diabetes Educators) conferences, taking the pulse of diabetes research and searching out new products and devices. And because I'm passionate about how our community can make an advocacy impact with the right tools, I've created "Two-Minute Diabetes Advocacy" on my blog, which gives everyone an overview of what each of us can do in less than two minutes to share our thoughts with the government.
All this while running around after an incredibly active three-year-old... I'm deliriously happy and exhausted!
Wow, you've been busy! What exactly is this new Diabetes UnConference you're organizing?
Think "Diabetes Camp for Adults," but we can't roast marshmallows over an open campfire and there are no bugs. (The Flamingo hotel in Las Vegas where it's being held frowns on both.)
This has been a dream of mine: to bring adults with type 1 and type 2 diabetes together to talk in a safe environment about living with diabetes. Most conferences are for medical professionals, and even those who do a fabulous job providing support for certain segments of the diabetes community don't allow for type 1 and type 2s to learn from each other and grow as ONE community, not separately.
We've received tremendous support from sponsors, who recognize that this is something that has never been done -- and they want to help. As I told the community on Labor Day, we're also offering scholarships to The Diabetes UnConference! (Editor's Note: This is the final week for those scholarships, so be sure to apply before Sept. 30!). There are other surprises, too, and the best way to get the latest is by following us on Facebook or signing up for the event newsletter.
You've also had your hands in several community advocacy initiatives... how did that come to be?
My eyes were opened last year. I always thought: "I'm just one person. I can't make a difference." But then advocate Bennet Dunlap showed me what bringing the community together can do and I'm proud to have been involved. This community is a force to be reckoned with when we raise our voices as one, and this has been proved time and time again with initiatives like StripSafely and CGMSafely and #WeAreNotWaiting -- all grassroots movements that are motivated by one thing: us.
The federal government is beginning to recognize that our community will do what it takes to ensure our safety and access to the tools, devices, and resources that we need. Whether it's commenting on dockets or meeting with Congress or raising awareness in other ways, I am in giddy awe of our community and what we can do together.
How do you think the DiabetesMine Innovation Summit can help with these advocacy efforts?
I came away from last year's Innovation Summit with a better understanding of this: device manufacturers who attended can help us achieve our advocacy goals; they're not the "bad guys" that some individuals believe they are. And, of course, that there are individuals and groups (like Tidepool!) that are working outside the box to help us as well. We need to support them all through our advocacy efforts.
This year's Innovation Summit will hopefully unveil even more ways we can work together.
What do you think has changed in the diabetes landscape over the past year? And how do you think that will influence this year's Summit?
This year has been one of connection: devices connecting to each other in new ways have been submitted for FDA approval, Tidepool has received their 501(c)(3) status and are connecting with many groups and device manufacturers who share in their vision of open data for real-time monitoring, and Nightscout/DIY groups have allowed families to breathe a little easier with the ability to connect and view Dexcom results remotely. And the Bionic Pancreas? Diabetes tech that keeps our blood sugars in range with minimal (if any) human intervention? I'm a huge fan and supporter!
Ten years ago, these technologies didn't exist. They were all just dreams. Now these dreams are becoming reality. And all of the dreams and innovation comes from the personal passions of the people involved, which is what makes me all the more excited for this year's Summit.
Thanks, Christel. We love all that you've been doing, and can't wait to see you again in November -- and see what materializes from this event!