Call for an Open Model of Diabetes Care! (i.e. Standards)
Call for an Open Model of Diabetes Care! (i.e. Standards)
Written by Amy Tenderich
| Published on March 8, 2013
As a follow up to the 2012 DiabetesMine Innovation Summit event held last November at Stanford University, we wanted to share the gist of the keynote talk about why the development of standards for diabetes devices and data is so crucial.
We had thought to create a white paper on the topic, but on the recommendation of the wonderful Kelly Close of Close Concerns, decided that a video version would be much more impactful; it's certainly easier to share and brings the message more to life!
If you care at all about improving diabetes technology tools, please take just six minutes to watch this recap of the Call for an Open Model of Diabetes Care by Dr. Ikhlaq Sidhu, director of the Center for Entrepreneurship and Technology at U.C. Berkeley:
Our hope is that by next year's Summit, we'll be presenting a very different message -- if you catch my drift ;)
Disclaimer: Content created by the Diabetes Mine team. For more details click here.
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Maybe for some a video works, but this means that you must replay, replay, replay to get the full and complete meaning sometimes and see the information to be sure you haven't missed anything. Not everyone is a visual learner. I like having a paper copy to read and study and then mark it up where I have other thoughts or even additional thoughts or ideas.This is important and should have interest for all type of patients, but I refuse to watch it again and will go back to the health information technology (HIT) bloggers writing about the same type of information and the bloggers that are doctors and asking the same questions.No thanks for the video.
Chris Bergstrom (Chief Strategy & Commercial Officer, WellDoc)|2013-03-09
Powerful call to action, thank you for the excellent recap of the Keynote. Without question the need to provide the right data to the right people at the right place at the right time in a manner that is seamless and interoperable is essential to empowering better diabetes management. Further, once this happens, the real magic can occur... automatically turning the data into personalized, contextually relevant meaningful information, knowledge, actions, and outcomes. It is time for people with diabetes and their providers to have the support they need anytime, anywhere. (At WellDoc this is our mission and we look forward to addressing these needs.)
Ivoni M Nash|2013-03-09
Thank you very much for allowing me to represent the Community that have a very high risk and high rate of Diabetes. Attending the Diabetes Mine conference give me a chance to see what is really going on in this world and Pacific Islander do not know of. It is an eye opener, I learn a lot and I bring it back to my Pacific Isander Community in Utah. what a blessing to know of you and learn from you. Thank you very much for the execllent recap of the Keynote. Thank you again for reaching out to the community base organiation that work with Diabetes people who do not speak or understand Engish well. Malo , Malo, Malo, (Thank you, Thank you, Thank you, Thank you!)
Great video! Yes it's simple - I love our Dexcom and Omnipod but the software only works on a pc. We have an apple and I have considered getting a pc just for diabetes, but prefer apple in every other way. So we just don't really analyze data the way we should - and we could probably lower my daughter's a1c if we did.
Amy,Thanks for taking on this issue. It is because of people like you (and your vision back when you wrote the Open Letter to Steve Jobs (may his soul rest in peace -we miss you Steve!) that an increasing number of companies that make the devices that we people with diabetes use are paying attention to design, access to data, etc.Ah!... and thanks for taking the time to produce a video following the conference to give those that didn't have the fortune to attend the event a chance to have a 6-minute summary of the best of the keynote!Keep up the amazing work you do, amiga!
@Bob - you can access the original slideset here: http://www.slideshare.net/AllianceHealthNetworks/open-models-healthcare-v5-7And we're happy to provide you a written copy of the video script if you like. Just send an email request to email@example.com
Nice video. I'll tell you why I don't download often (I only do just before an endo appointment)-- between the two of us with T1D in my house, we've got something like 5 meters (including ones in various locations, like school, bedside, etc) that I have to collect and download; 2 pumps; 1 cgm... all use different cords, different software, etc. It takes at least a couple hours to download everything successfully, and then half the time there are technical difficulties, and half the time the endo office has to do it again because for some reason they can't access the data. And then some reports/data aren't even available to the patient. It is ridiculous.I agree with the speaker that we need a new system! It would be nice to be able to include information about all sorts of life events-- aside from just food/exercise but also stress, menses, sleep, hot flashes, altitude, whatever-- all the billions of things that can affect BG control.
Fantastic summary of a very compelling presentation! Kudos to Amy and the Diabetes Mine team for creating a forum for raising these issues, which are so important for patient empowerment and self care. Too often, the patient's need for data access and flexible analysis is the last thing device software designers seem to consider. Providing standardized data formats and access to raw data files is not an option - it's an obligation. As patients, it's our right to use our data in a way that best empowers our understanding and care. It's our data coming from our devices that measure and treat our disease. We should be able to work with that data, combine it with data from other sources and create - or purchase a system that somebody else created - which displays that data in the way that best enables us to care for ourselves.Every CEO and CTO of every device company needs to see this video. They spend millions of dollars developing innovative, important devices, based on incredibly difficult science and complex engineering. Making the data standardized, accessible and downloadable in Apple is an easy, relatively inexpensive problem to solve. As patients, we need to tell them to solve it!Thanks Amy and everybody at DBMine for a great summit and a fantastic summary of a compelling keynote!
I agree with Dr. Sidhu the ability to inner connect devices to share data and have mobile capabilities would be extremely valuable to the diabetes care industry but it could also be valuable to many other industries.
Wonderful video! And spot on about standardization and compatibility of devices. I think Medtronic has made a huge mistake in going to proprietary infusion sets, and data management, because it's actually a very good pump (although in need of modernization), but chains you to the use of their products. Consumers need choice, and when Dexcom is working on integrating with a number of different pumps and meters, that's where the future of the market is. Now, if only Diasend was easily available in the US, it would be a good thing!
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