You may remember that last Fall, we introduced something called the DiabetesMine Challenges Matrix®, a new way of mapping the diabetes care landscape with a focus on the needs of people with diabetes (PWDs) and their caregivers.
In essence, it's a “scorecard” for the patient community to rate all available D-tools and services along the axes of IMPACT and ACCESS – the most critical factors in any offering (product or program) meant to help people manage diabetes.
Our team began by breaking down the challenges people with diabetes face into six categories, and rating the various items in these categories ourselves (to the best our of knowledge), before asking the community for input via an online survey conducted last Spring. Thank you to all who participated in that.
Today, we're excited to publish a downloadable version of the full report that came out of that community survey!
Click here to download the DiabetesMine Matrix Report »
About the DiabetesMine Challenges Matrix Report
As you read the report, a few highlights and things to keep in mind:
Looking at the four quadrants on the Matrix, the most desirable quadrant is the upper right -- where you see items that are rated highest on both ACCESS and IMPACT; the least desirable quadrant is the lower left, with items that score lowest on both counts.
Our survey respondents were asked to give their input on our original scoring, recommend additional items to add to the Matrix, and share their experiences and knowledge in written comments -- which they did in more than 1,000 statements added!
The comment trends were eye-opening. In essence, we identified clear calls from the Patient Community for three things:
1) Interconnectivity of products and programs -- which dovetails with the ongoing call for Interoperability that our community has been actively advocating on for several years. Yes, there's been lots of movement on this front, but clearly, NOT ENOUGH.
2) Improved Education of healthcare providers (HCPs) on the challenges of diabetes IN REAL LIFE. We saw lots of frustration expressed that HCPs still take a “text book” approach, that does not address the realities of patients' lives.
3) Patient Empowerment is desired on three levels:
- Partnership between doctors and patients: people want to be treated with respect, and as partners in decision-making about their own care.
Support Networks: the community wants these to be better recognized and encouraged by the Medical Establishment -- even making an introduction to the patient community "part of the prescription" for newly diagnosed PWDs.
- Patient Community Input: a call for more input into the design of diabetes tools, and into research on our disease via crowdsourcing and other channels.
These appear to be the Big Areas that need work, and at our 2016 DiabetesMine Innovation Summit, we're calling on the Powers That Be to hear these cries from the patient community.
Our hope of course is that the DiabetesMine Challenges Matrix also sheds some light on PWDs' experiences with and sentiments around current tools.
The idea is that this information can be used toward increasing the ACCESSIBILITY of the most impactful items, and increasing the IMPACT of the tools and programs that are already most widely accessible.
About the 2016 DiabetesMine Innovation Summit
Hopefully you saw our post Thursday about the Fall 2016 DiabetesMine Innovation events.
We're excited to have hosted the 2016 DiabetesMine Innovation Summit today (Friday, Oct. 28) with a theme focus on Prioritizing Quality of Life.
About the Summit:
The DiabetesMine™ Innovation Summit is an influential annual gathering of an incredible group of informed patient advocates, pharma marketing and R&D leaders, device designers, health tech visionaries, passionate clinicians, regulatory experts, payers and more. It’s designed to spark discussions and interactions that lead to faster, better development and design, and increased access to innovations that will improve life with diabetes. This event takes a broad view of innovation in all aspects of diabetes care – stemming directly from patient community perspectives.
And here are today's program highlights:
The 2016 DiabetesMine Innovation Summit (#dbminesummit16)
- An eye-opening talk on “The Quality of Life Connection: Happiness, Habit-Building and the Healthcare Experience” by Stanford School of Medicine entrepreneur Kyra Bobinet
- NINE showcased talks exploring innovations in Prioritizing Quality of Life; Taking Diabetes Education and Care to Where Patients are; and Navigating the Healthcare System – including Patient Engagement & Value-Based Care (we'll be writing about the talks here soon)
- Introducing our 2016 Patient Voices Winners – diverse voices representing patient needs
- Unveiling of our new research updating the Diabetes Challenges Matrix®, a new way to view the diabetes care landscape, in which patients have now rated a variety of tools and services **
- An interactive session encouraging “Changing Perspectives” among stakeholder groups**
- Unveiling of the 2016 DiabetesMine Usability Innovation Awards Winners
We tell our attendees to "get ready once again to roll up your sleeves for candid and meaningful interaction between empowered patients, health care leaders and all manner of diabetes stakeholders!"
We'll also be announcing the 2016 winners of our DiabetesMine Usability Innovation Awards, and tweeting those live, and then reporting on them more fully in the coming weeks.
#WeAreNotWaiting to keep pushing for solutions that help PWDs live a better life with this difficult illness – beyond just glucose measurement!